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https://www.aboutface.ca

About Face. Toronto, ON: (Website)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
A nonprofit support network for facial difference. Their resources include newsletters, videos and publications.
Title
AboutFace
Corporate Author
About Face
Place
Toronto, ON
Topics
Children with Facial Difference
Abstract
A nonprofit support network for facial difference. Their resources include newsletters, videos and publications.
Language
English
Material Type
Website
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
https://www.aboutface.ca
Audience
Patient or Public

Children with facial difference: A parents' guide

https://libraries.phsa.ca/permalink/catalog103156
Charkins, Hope. Bethesda, MD: Woodbine House, Inc. , 1996. 1st ed. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GK 717 CHA 1996
Written by a social worker and mother of a child with facial difference, this book provides parents and families the information and support they need to understand and cope with the many challenges presented by facial difference. Includes different forms of facial difference (e.g., cleft lip and/…
Title
Children with facial difference: A parents' guide
Author
Charkins, Hope
Edition
1st ed.
Place
Bethesda, MD
Publisher
Woodbine House, Inc.
Year Published
1996
Physical Description
Paperback, 361 pp.; Dimensions (in inches): 0.75 x 8.50 x 5.54
Topics
Children with Facial Difference
Abstract
Written by a social worker and mother of a child with facial difference, this book provides parents and families the information and support they need to understand and cope with the many challenges presented by facial difference. Includes different forms of facial difference (e.g., cleft lip and/or palate; craniosynotosis including Apert, Crouzon, Pfeiffer and Saethre-Chotzen syndromes) branchial arch syndromes including hemifacial microsomia, Treacher Collins syndrome and Nager syndrome; Pierre Robin sequence and associated syndromes such as Stickler syndrome and velocardiofacial (Shprinzen) syndrome; and other rare syndromes e.g., Moebius syndrome. Covers adjustment, medial concerns treatment and professionals; self-esteem, family life and strangers; speech, language and hearing needs; education; legal rights and health insurance; and advocacy. Contains extensive glossary, reading list and a resource guide is included.
ISBN
0-933149-61-1
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GK 717 CHA 1996
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Facing it together: A resource guide to prepare & support parents raising a baby with a facial difference

https://libraries.phsa.ca/permalink/catalog111234

www.aboutfaceinternational.org

AboutFace. Toronto, ON: AboutFace , 2009. (Kit) — 2 copies, 2 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GK 717 FAC 2009
This workbook and accompanying DVD provides information to help parents of newborns with facial differences to understand the personal and social issues as well as treatment plans and options related to their child's facial difference. AboutFace is a charitable organization dedicated to providing …
Title
Facing it together: A resource guide to prepare & support parents raising a baby with a facial difference
Subtitle
Program Workbook
Author
AboutFace
Place
Toronto, ON
Publisher
AboutFace
Year Published
2009
Physical Description
Paperback, 54 p.
DVD
Topics
Children with Facial Difference
Abstract
This workbook and accompanying DVD provides information to help parents of newborns with facial differences to understand the personal and social issues as well as treatment plans and options related to their child's facial difference. AboutFace is a charitable organization dedicated to providing emotional, social and peer support, resources and educational programs for and on behalf of individuals with facial differences and their families.
ISBN
9780981148410
Language
English
Material Type
Kit
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
www.aboutfaceinternational.org
Audience
Patient or Public
Call Number
GK 717 FAC 2009
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Copy 2 BC Children's and Women's Family Support & Resource Centre Available
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Guide for feeding your baby with a cleft lip and/or palate

https://libraries.phsa.ca/permalink/catalog111020

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1553_FeedingBabyWithCleftLipPalate_2009_Apr.pdf

Cleft Palate and Craniofacial Program. Vancouver, BC: BC Children's Hospital , 2009. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
BCCH1553
This pamphlet provides information on breast or bottle feeding a newborn baby with a cleft lip and/or palate.
Title
Guide for feeding your baby with a cleft lip and/or palate
Corporate Author
Cleft Palate and Craniofacial Program
Place
Vancouver, BC
Publisher
BC Children's Hospital
Year Published
2009
Topics
Children with Facial Difference
Cleft Lip. Cleft Palate
Craniofacial Conditions
Breastfeeding
Abstract
This pamphlet provides information on breast or bottle feeding a newborn baby with a cleft lip and/or palate.
Notes
BCCH1553
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1553_FeedingBabyWithCleftLipPalate_2009_Apr.pdf
Audience
Patient or Public
Call Number
BCCH1553

http://www.apert.org/doherty/

Doherty, Steve. Henly Beach, SA (Australia): Seaview Press , 2003. (Online)
Audience
Patient or Public
Agency
BC Children's and Women's
The book tells the story of the Doherty family experiences with a child born with Apert syndrome
Title
Maggie
Author
Doherty, Steve
Place
Henly Beach, SA (Australia)
Publisher
Seaview Press
Year Published
2003
Topics
Craniofacial Conditions
Children with Facial Difference
Birth Defects. Congenital Abnormalities
Abstract
The book tells the story of the Doherty family experiences with a child born with Apert syndrome
Language
English
Material Type
Online
Agency
BC Children's and Women's
URL
http://www.apert.org/doherty/
Audience
Patient or Public

Missing genetic pieces: Strategies for living with VCFS, the chromosome 22q11 deletion.

https://libraries.phsa.ca/permalink/catalog108820
Baker-Gomez, Sherry. Phoenix, AZ: Desert Pearl Publishing , c2004. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GI 300 BAK 2004
This is a comprehensive handbook for parents, professionals and anyone wanting to know about chromosome 22 deletion (22q11) and its dynamics. It includes personal stories, dictionary of terms, useful tips and resources.
Title
Missing genetic pieces: Strategies for living with VCFS, the chromosome 22q11 deletion.
Author
Baker-Gomez, Sherry
Place
Phoenix, AZ
Publisher
Desert Pearl Publishing
Year Published
c2004
Physical Description
Paperback; xiv, 559 p.
Topics
Genetic Disorders
Heart/Heart Diseases-Children
Children with Facial Difference
Abstract
This is a comprehensive handbook for parents, professionals and anyone wanting to know about chromosome 22 deletion (22q11) and its dynamics. It includes personal stories, dictionary of terms, useful tips and resources.
ISBN
097453580X
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GI 300 BAK 2004
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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VCFS (Velo-Cardio-Facial syndrome): Footprints of hope

https://libraries.phsa.ca/permalink/catalog108817
Tanner, Raymond Geoffrey. Seaford, South Australia: Freestyle Publications , 2004. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GI 300 TAN 2004
VCFS is the second most common genetic disorder after Down syndrome. Most children born with VCFS have heart and palate defects, distinctive facial appearance and learning difficulties. tis book explains this syndrome and tells stories of families that have suffered from it.
Title
VCFS (Velo-Cardio-Facial syndrome): Footprints of hope
Author
Tanner, Raymond Geoffrey
Place
Seaford, South Australia
Publisher
Freestyle Publications
Year Published
2004
Physical Description
Paperback; vii, 105 p.
Topics
Genetic Disorders
Heart/Heart Diseases-Children
Children with Facial Difference
Abstract
VCFS is the second most common genetic disorder after Down syndrome. Most children born with VCFS have heart and palate defects, distinctive facial appearance and learning difficulties. tis book explains this syndrome and tells stories of families that have suffered from it.
ISBN
958117535
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GI 300 TAN 2004
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Palacio, R.J. New York, NY: Alfred A. Knopf , 2012. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH GK 717 PAL 2012
August Pullman was born with a facial difference that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be treated as an ordinary kid—but his new classmates can’t get past Auggie’s extraordinary face. WONDER begins …
Title
Wonder
Author
Palacio, R.J.
Place
New York, NY
Publisher
Alfred A. Knopf
Year Published
2012
Physical Description
Hardcover: 316 p.
Topics
Children with Facial Difference
Abstract
August Pullman was born with a facial difference that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be treated as an ordinary kid—but his new classmates can’t get past Auggie’s extraordinary face. WONDER begins from Auggie’s point of view, but soon switches to include his classmates, his sister, her boyfriend, and others. These perspectives converge in a portrait of one community’s struggle with empathy, compassion, and acceptance.
ISBN
978-0-375-86902-0
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH GK 717 PAL 2012
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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8 records – page 1 of 1.