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Understanding living with a chronic illness: Written by doctors for kids

https://libraries.phsa.ca/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 800 REN 2018
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Title
Understanding living with a chronic illness: Written by doctors for kids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place
New York, NY
Publisher
Jumo
Year Published
2018
Physical Description
Softcover; 16 p.
Topics
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR EF 800 REN 2018
copy 1 BC Children's and Women's Family Support & Resource Centre Available

Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://libraries.phsa.ca/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CAR 2016
Title
Quand la vie se fragilise: Un guide pour vous et vos proches aidants
Author
Cardinal Remete, France
Place
Montreal, QC
Publisher
Multimondes Inc.
Year Published
2016
Physical Description
Paperback, 311 p.
Topics
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CAR 2016
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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On Trac: Transitioning responsibly to adult care

https://libraries.phsa.ca/permalink/catalog112871

http://ontracbc.ca/

Vancouver, BC: BC Children's Hospital , 2014. (Online)
Audience
Patient or Public
Agency
BC Children's and Women's
ON TRAC is a province-wide, multifaceted Transition Initiative to support comprehensive, continuous, accessible, sustainable and developmentally-appropriate care to youth and young adults (ages 12-24 years) with chronic health conditions and/or disabilities (CHC/Ds) as they plan, prepare and tran…
Title
On Trac: Transitioning responsibly to adult care
Place
Vancouver, BC
Publisher
BC Children's Hospital
Year Published
2014
Topics
Chronic Illness
Young Adults
Abstract
ON TRAC is a province-wide, multifaceted Transition Initiative to support comprehensive, continuous, accessible, sustainable and developmentally-appropriate care to youth and young adults (ages 12-24 years) with chronic health conditions and/or disabilities (CHC/Ds) as they plan, prepare and transfer from pediatric to adult health care services.
Material Type
Online
Agency
BC Children's and Women's
URL
http://ontracbc.ca/
Audience
Patient or Public

Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://libraries.phsa.ca/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 CHA 2014 STACKS
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Title
Mon enfant a une maladie chronique : Stratégies, ressources, moyens
Author
Chartre, Marie-Eve
Gagne, Johanne
Place
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Year Published
2014
Physical Description
Paperback, 127 p.
Topics
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 CHA 2014 STACKS
Copy 1 BC Children's and Women's Family Support & Resource Centre STACKS Available
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Digging deep: A journal for young people facing health challenges

https://libraries.phsa.ca/permalink/catalog113126
Offner, Rose, Brisson, Sheri. San Francisco, CA: Resonance House , 2013. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
Title
Digging deep: A journal for young people facing health challenges
Author
Offner, Rose
Brisson, Sheri
Place
San Francisco, CA
Publisher
Resonance House
Year Published
2013
Physical Description
Softcover: 137 p.
Topics
Coping with Chronic Illness-Children
Abstract
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
ISBN
9780989103909
Language
English
Material Type
Book
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Lost
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Good-bye, bumps! Talking to what's bugging you

https://libraries.phsa.ca/permalink/catalog119793
Dyer, Wayne W., Dyer, Saje, Heller Budnick, Stacy. India: Hay House Publishers India , 2014. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them,…
Title
Good-bye, bumps! Talking to what's bugging you
Author
Dyer, Wayne W.
Dyer, Saje
Heller Budnick, Stacy
Place
India
Publisher
Hay House Publishers India
Year Published
2014
Physical Description
Hardcover, ill., 29 p.
Topics
Coping with Chronic Illness-Children
Fiction
Abstract
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them, they can change their attitude toward it and not allow it to have power over them.
ISBN
9781401945855
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Help with hospice & palliative care

https://libraries.phsa.ca/permalink/catalog114741
Naparstek, Belleruth (author & narrator). Health Journeys | Playaway , 2016. (Audio, Pre-loaded Media) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
PLAY EF 860 NAP 2016
This imagery helps end-of life patients find acceptance, forgive self and others, say goodbye, prepare for the journey and bring closure to unresolved issues. Made to help loved ones as well. Track 1: Introduction; Track 2: Guided Imagery; Track 3: Affirmations.
Title
Help with hospice & palliative care
Author
Naparstek, Belleruth (author & narrator)
Publisher
Health Journeys
Playaway
Year Published
2016
Physical Description
1 playaway, 1 AAA battery: 01:07:26
Topics
Palliative Care
Coping with Chronic Illness in the Family
Coping with Death
Abstract
This imagery helps end-of life patients find acceptance, forgive self and others, say goodbye, prepare for the journey and bring closure to unresolved issues. Made to help loved ones as well. Track 1: Introduction; Track 2: Guided Imagery; Track 3: Affirmations.
Notes
Playaway is a better listening experience combining as easy-to-use player with an entire audiobook.
ISBN
9781509413188
Language
English
Material Type
Audio
Pre-loaded Media
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
PLAY EF 860 NAP 2016
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://libraries.phsa.ca/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 HUM 2012 STACKS
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Title
La vie...avant, pendant et après: Les soins palliatifs pédiatriques
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place
Montreal, QC
Publisher
CHU Sainte-Justine
Year Published
2012
Physical Description
Paperback, 335 p.
Topics
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 HUM 2012 STACKS
copy 1 BC Children's and Women's Family Support & Resource Centre STACKS Available
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Extreme parenting: Parenting your child with a chronic illness

https://libraries.phsa.ca/permalink/catalog112749
Dempsey, Sharon. Philadelphia, PA: Jessica Kingsley Publishers , 2008. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GK 600 DEM 2008
Title
Extreme parenting: Parenting your child with a chronic illness
Author
Dempsey, Sharon
Place
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Year Published
2008
Physical Description
Softcover: 201 p.
Topics
Chronic Illness
Parenting
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GK 600 DEM 2008
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Parenting children with health issues: Essential tools, tips, and tactics for raising kids with chronic illness, medical conditions & special healthcare needs

https://libraries.phsa.ca/permalink/catalog110357
Cline, Foster W, Greene, Lisa C. Golden, CO: Love and Logic Institute, Inc. , 2007. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GK 600 CLI 2007
Whether a child struggles with weight problems, diabetes, cancer or any other health issue, parents will learn the essential parenting skills they need to help their child comply with medical requirements, cope well with health challenges, and live a hope-filled life. This book will teach parents a…
Title
Parenting children with health issues: Essential tools, tips, and tactics for raising kids with chronic illness, medical conditions & special healthcare needs
Author
Cline, Foster W
Greene, Lisa C.
Place
Golden, CO
Publisher
Love and Logic Institute, Inc.
Year Published
2007
Physical Description
Paperback: 343 pages
Topics
Parenting
Chronic Illness
Abstract
Whether a child struggles with weight problems, diabetes, cancer or any other health issue, parents will learn the essential parenting skills they need to help their child comply with medical requirements, cope well with health challenges, and live a hope-filled life. This book will teach parents and caregivers how to: Encourage your child to love life despite health challenges; Handle refusal to take medication and do medical treatments; Skillfully respond to your child’s special emotional needs; Avoid power struggles and other common parenting traps; Promote responsibility for health care without nagging or lecturing; Navigate sibling, family and couple relationship issues; Enable your child to make good self-care decisions.
ISBN
9781930429895
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GK 600 CLI 2007
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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How to help children through a parent's serious illness: Supportive, practical advice from a leading child life specialist

https://libraries.phsa.ca/permalink/catalog112422
McCue, Kathleen. New York, NY: St. Martin's Griffin , 2011. (Book) — 1 copy, 1 available
Audience
Patient or Public
Professional
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 860.5 MCC 2011
Fully revised and updated, this new edition explores the major issues and developments from the last decade that affect children today, including the dangers and opportunities of the Internet, a deeper understanding of how hereditary diseases affect children, the impact of the nation's explosive gr…
Title
How to help children through a parent's serious illness: Supportive, practical advice from a leading child life specialist
Author
McCue, Kathleen
Place
New York, NY
Publisher
St. Martin's Griffin
Year Published
2011
Physical Description
Softcover: 331 p.
Topics
Chronic Illness
Children Coping with Family Illness
Children's Emotions
Abstract
Fully revised and updated, this new edition explores the major issues and developments from the last decade that affect children today, including the dangers and opportunities of the Internet, a deeper understanding of how hereditary diseases affect children, the impact of the nation's explosive growth in single-parent families, and new insights into how family trauma and a parent’s mental illness may affect children.
ISBN
9780312697686
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Professional
Call Number
EF 860.5 MCC 2011
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://libraries.phsa.ca/permalink/catalog112348
Kaufman, Miriam. Toronto, ON: Firefly Books Ltd , 2012. 3rd ed. (Book) — 3 copies, 3 available
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 KAU 2012
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Title
Easy for you to say: Q & A's for teens living with chronic illness or disability
Author
Kaufman, Miriam
Edition
3rd ed
Place
Toronto, ON
Publisher
Firefly Books Ltd
Year Published
2012
Physical Description
Softcover: 309 p.
Topics
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 KAU 2012
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Copy 2 BC Children's and Women's Family Support & Resource Centre Available
Copy 4 BC Children's and Women's Sunny Hill Education Resource Centre Redevelopment Available
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Through the eyes of a child: Living with diabetes, lupus and cystic fibrosis

https://libraries.phsa.ca/permalink/catalog110236
Sabreen, Rich (Producer). Sherborn, MA: Aquarius Health Care Media , 2007. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 SAB 2007
This program is told through the eyes of five young people who are living with these serious chronic illnesses on a daily basis. It is shot primarily by the families themselves, and the stories unfold as we follow them through a day in each of their lives. Learn just a little more about the lives
Title
Through the eyes of a child: Living with diabetes, lupus and cystic fibrosis
Author
Sabreen, Rich (Producer)
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2007
Physical Description
1 DVD (27 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness-Children
Diabetes
Abstract
This program is told through the eyes of five young people who are living with these serious chronic illnesses on a daily basis. It is shot primarily by the families themselves, and the stories unfold as we follow them through a day in each of their lives. Learn just a little more about the lives of people around you who are showing tremendous strength in the face of life’s greatest challenges.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 SAB 2007
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers

https://libraries.phsa.ca/permalink/catalog111592
Lauder, G.R., Massey, Roslyn. Bloomington, IN: Xlibris Corporation , 2010. (Book) — 3 copies, 3 available
Audience
Patient or Public
Featured
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH FM 800 LAU 2010a
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The …
Title
Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers
Author
Lauder, G.R.
Massey, Roslyn
Place
Bloomington, IN
Publisher
Xlibris Corporation
Year Published
2010
Physical Description
Softcover, 100 pages.
Topics
Coping with Pain
Coping with Chronic Illness Young Adult
Pain
Pain
Abstract
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers– which included those who have been treated for CRPS – to provide their feedback.
ISBN
9781453589953
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Featured
Call Number
YOUTH FM 800 LAU 2010a
Copy 1 BC Children's and Women's Family Support & Resource Centre Missing
Copy 2 BC Children's and Women's Family Support & Resource Centre Missing
Copy 3 BC Children's and Women's Family Support & Resource Centre Available
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Feeding and nutrition for the baby with congenital heart disease

https://libraries.phsa.ca/permalink/catalog111319
St. Pierre, Astrid, Khattra, Parveen. Vancouver, BC: BC Children's Hospital , 2009. (Kit) — 2 copies, 2 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Call Number
FD 500 STP 2009
A Sunny Hill TeleCDR Education series presention recorded at Sunny Hill Health Centre for Children on September 17, 2009. Presenters were Parveen Khattra RD, CNSC and Astrid St. Pierre BSc(OT), MRSc from Cardiac Sciences, BC Children's Hospital, Vancouver BC.
Title
Feeding and nutrition for the baby with congenital heart disease
Author
St. Pierre, Astrid
Khattra, Parveen
Place
Vancouver, BC
Publisher
BC Children's Hospital
Year Published
2009
Physical Description
1 DVD Presentation (36:51 mins) and 1 CD-ROM Audio Presentation (36:51 mins); incl. PDF presentation handouts, reference list, infant feeding and nutrition checklist
Topics
Congenital Heart Diseases
Infant Feeding
Children's Health-Diet/Nutrition
Chronic Illness
Early Intervention
Abstract
A Sunny Hill TeleCDR Education series presention recorded at Sunny Hill Health Centre for Children on September 17, 2009. Presenters were Parveen Khattra RD, CNSC and Astrid St. Pierre BSc(OT), MRSc from Cardiac Sciences, BC Children's Hospital, Vancouver BC.
Language
English
Material Type
Kit
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Audience
Patient or Public
Call Number
FD 500 STP 2009
Copy 1 BC Children's and Women's Sunny Hill Education Resource Centre Available
Copy 2 BC Children's and Women's Sunny Hill Education Resource Centre Available

Positive coping with health conditions: A self-care workbook

https://libraries.phsa.ca/permalink/catalog111156

http://www.comh.ca/publications/resources/pub_pchc/PCHC%20Workbook.pdf

Bilsker, Dan, Samra, Joti, Goldner, Elliot. Burnaby, BC: Consortium for Organizational Mental Healthcare, Simon Fraser University , 2009. (Book, Online)
Audience
Patient or Public
Agency
BC Children's and Women's
URL Notes
CLick on the link to view
This is a self-care manual authored by scientist-practitioners with expertise in issues relating to coping with health conditions. This manual is designed for individuals who deal with health conditions, including patients, physicians, psychologists, nurses, rehabilitation professionals and resear…
Title
Positive coping with health conditions: A self-care workbook
Author
Bilsker, Dan
Samra, Joti
Goldner, Elliot
Place
Burnaby, BC
Publisher
Consortium for Organizational Mental Healthcare, Simon Fraser University
Year Published
2009
Physical Description
112 page PDF File
Topics
Coping with Chronic Illness
Stress
Stress Reduction
Stress and Health Effects
Stress Reduction Techniques
Abstract
This is a self-care manual authored by scientist-practitioners with expertise in issues relating to coping with health conditions. This manual is designed for individuals who deal with health conditions, including patients, physicians, psychologists, nurses, rehabilitation professionals and researchers.
Material Type
Book
Online
Agency
BC Children's and Women's
URL
http://www.comh.ca/publications/resources/pub_pchc/PCHC%20Workbook.pdf
URL Notes
CLick on the link to view
Audience
Patient or Public

Pediatric nutrition in chronic diseases and developmental disorders: Prevention, assessment, and treatment

https://libraries.phsa.ca/permalink/catalog110390
Ekvall, Shirley W.(editor), Ekvall, Valli K. (editor). New York, NY: Oxford University Press , 2005. 2nd ed. (Book) — 1 copy, 1 available
Audience
Professional
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Call Number
REF BB 200 EKV 2005
Contents: ; Part I. PREVENTIVE NUTRITION Shirley W. Ekvall ; A. NUTRITION AND GROWTH 1. Prenatal growth in pregnancy , Shirley W. Ekvall, Valli K. Ekvall, and Eileen Fowles 2. Postnatal growth in infancy , Barbara Niedbala and Shirley W. Ekvall 3. Small for gestational age infant and problems of …
Title
Pediatric nutrition in chronic diseases and developmental disorders: Prevention, assessment, and treatment
Author
Ekvall, Shirley W.(editor)
Ekvall, Valli K. (editor)
Edition
2nd ed.
Place
New York, NY
Publisher
Oxford University Press
Year Published
2005
Physical Description
Hardcover, 532 p.
Topics
Children's Health-Diet/Nutrition
Chronic Illness
Abstract
Contents:
Part I. PREVENTIVE NUTRITION Shirley W. Ekvall
A. NUTRITION AND GROWTH 1. Prenatal growth in pregnancy , Shirley W. Ekvall, Valli K. Ekvall, and Eileen Fowles 2. Postnatal growth in infancy , Barbara Niedbala and Shirley W. Ekvall 3. Small for gestational age infant and problems of prematurity , Oussama Itani, Barbara Niedbala, and Reginald Tsang
B. NUTRITION EVALUATION 4. Nutritional assessment - all levels and ages , Shirley W. Ekvall, Valli K. Ekvall, Jennifer Walberg-Wolfe and Wendy Nehring 5. Community based nutrition services and resources (counseling/cultural diversity) , Cecilia Rokusek, Elvira Jarka, Barbary Hanley and Joan Earle Hahn 6. Nutrition support following stress of burns/Injury , Theresa Mayes and Michele Gottschlich 7. Sports nutrition for children , Karen Dolins and Martica Heaner 8. Vegetarian diets for children , Georgia Hodgkin
Part II. CHRONIC DISEASES AND DEVELOPMENTAL DISABILITIES , Shirley W. Ekvall
A. NEUROLOGICAL AND DEVELOPMENTAL 9. Cerebral Palsy , Linda Bandini, Shirley W. Ekvall, and Virginia Stallings 10. Seizures and Epilepsy , Donald Olsen, Tuomas Westermarck, and Shirley W. Ekvall 11. Myelomeningocele , Shirley W. Ekvall and Frank Cerniglia, Jr. 12. Nutrients, Neurotransmitters and brain dysfunction , Valli K. Ekvall, Shirley W. Ekvall and Eric Bonsall 13. Autism , Vivianne Nordin and Shirley W. Ekvall 14. The Fetal Alcohol Syndrome , Agnes Huber Shirley W. Ekvall 15. Down Syndrome , George Capone, David Muller and Shirley W. Ekvall 16. Prader-Willi Syndrome , Helen McCune and Daniel Driscoll 17. Rett Syndrome , Genila Bilbat, Carmen Cuffari, and SakkuBai Naidu
B. BEHAVIOR AND EATING DISORDERS 18. Childhood Obesity , Shirley W. Ekvall, Linda Bandini, Valli K. Ekvall and Carol Curtin 19. Attention Deficit Hyperactivity Disorder , Valli K. Ekvall, Shirley W. Ekvall and Susan Mayes 20. Failure to thrive , Barbara Niedbala and Mark Swanson 21. Rumination , Valli K. Ekvall, Shirely W. Ekvall 22. Anorexia Nervosa, Bulimia Nervosa, and Eating Disorders , Valli K. Ekvall, Shirley W. Ekvall 23. Lead Toxicity and Pica , Agnes Huber and Shirley W. Ekvall
C. FEEDING DISORDERS 24. Feeding problems of the child with special health care needs , Harriet Cloud, Shirley W. Ekvall and Linda Hicks 25. Cleft lip and or palate and other craniofacial anomalies , Nedra Christensen and Howard Saal
D. DRUGS 26. Botanicals in Pediatrics , Rudolf Bauer, Andrea Hrastinger, Birgit Dietz and Gail Mahady 27. Drug therapy and nutrition , Ninfa Springer and Marshal Schlafer E. MISCELLANEOUS CHRONIC DISEASES 28. Allergy and immunological disorders in children , Amal Assa'ad and Steve Sutton 29. HIV infection in children , Keith Thomas Ayoob 30. Juvenile Rheumatoid Arthritis , Suzanne Simpson and Margaretha Haugen 31. Children with Cancer , Karen Kalinyak and Ingrid Ora 32. Congenital Heart disease and lipid disorders in children , Alan Lewis and Violet Hsieh 33. Chronic renal diseases in children , Judith Beto and Vinod Bansal 34. Nutrition in Sickle-cell Anemia , Karen Kalinyak 35. Nutrition in gastrointestinal disorders of infancy and childhood (with nutrition support and probiotics) , Michael Farrell 36. Constipation and fiber , Shirley W. Ekvall
Part III. HEREDITARY METABOLIC DISORDERS (INCLUDING TANDEM MASS SPECTROMETRY STATE FOR A.B.C. SCREENINGS)
A. DISORDERS OF AMINO ACID METABOLISM 37. Homocystinuria , Rani Singh 38. Maple syrup urine disease , Rani Singh 39. Phenylketonuria and Maternal Phenylketonuria , Melanie Hunt, Nancy Leslie, Helen Berry, and Susan Berry 40. Tyrosinemia , Rebecca Roberts, Francjan van Spronsen, Shirley W. Ekvall, and Valli K. Ekvall 41. Urea Cycle Pathway , Kathleen Huntington and Cary Harding B. ORGANIC ACIDEMIAS 42. Methylmalonic Acidemia and Propionic Acidemia , Dianne Frazier 43. Isovaleric Acidemia, 3 Methylcrotonyl Glycinuria , Dianne Frazier 44. Glutaric Acidemia Type I and 2-Ketoadipic Acidemia , Dianne Frazier c. FATTY ACID OXIDATION DISORDERS 45. Adrenoleukodystrophy and other Peroxisomal disorders , Hugo Moser and Nga Hang Brereton 46. Mitochondrial fatty acid oxidation defects , Melanie Gillingha, Sandr Van Calcar and Cary Harding 47. Mitochondrial disorders , Richard Boles and Kathleen Moseley
D. DISORDERS OF CARBOHYRDRATE METABOLISM 48. Insulin dependent and Type II Diabetes , Nedra Christensen 49. Galactosemia , Sandra vanCalcar and Jon Wolff 50. Lactose Intolerance , Shirley Hack and Ari Bergwerk 51. Disorders of Fructose Metabolism , Wendy Smith 52. Glycogen Storage Disease , Priya Kishnani E. Miscellaneous Genetic Disorders 53. Rubinstein-Taybi Syndrome , Jack Rubenstein 54. Celiac Disease , James Heubi and Annelie Carlsson 55. Respiratory Disorders (Cystic Fibrosis and Bronchiopulmonary Dysplasia) , Elisabeth Luder 56. Fragile X Syndrome , David Nelson and Mikiko Chihara Siomi 57. Hyperuricemias (Lesch-Nyhan Syndrome) , William Nyhan 58. Williams Syndrome , Shirley W. Ekvall and Colleen Morris 59. Wilson's Disease , Florence Stevens and Shirley W. Ekvall 60. Nutritional aspects of birth defects , Howard Saal.
ISBN
139780195165647
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Audience
Professional
Call Number
REF BB 200 EKV 2005
Copy 1 BC Children's and Women's Sunny Hill Education Resource Centre REF Available

Special brothers and sisters: Stories and tips for siblings of children with special needs, disability or serious illness

https://libraries.phsa.ca/permalink/catalog109785
Hames, Annette (Ed.) Mccaffrey, Monica (Ed.) Mccaffrey, Brendan (Illustrator). London, UK: Jessica Kingsley Publishers , 2005. (Book) — 2 copies, 2 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Call Number
GK 665 HAM 2005
A guidebook with short stories from 40 families, followed by the editors' commentary on understanding the situation and dealing with it. An easy-to-read, compassionate approach that emphasizes the love between siblings regardless of differences in abilities and perceptions. The resources/organizat…
Title
Special brothers and sisters: Stories and tips for siblings of children with special needs, disability or serious illness
Author
Hames, Annette (Ed.) Mccaffrey, Monica (Ed.) Mccaffrey, Brendan (Illustrator)
Place
London, UK
Publisher
Jessica Kingsley Publishers
Year Published
2005
Physical Description
Paperback, 95 p.
Topics
Siblings of Children with Disabilities
Chronic Illness
Sibling Relationships
Abstract
A guidebook with short stories from 40 families, followed by the editors' commentary on understanding the situation and dealing with it. An easy-to-read, compassionate approach that emphasizes the love between siblings regardless of differences in abilities and perceptions. The resources/organizations listed are in the UK, New Zealand, or Australia.
Notes
Grades 2-6
ISBN
139781843103837
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Audience
Patient or Public
Call Number
GK 665 HAM 2005
Copy 2 BC Children's and Women's Family Support & Resource Centre Missing
Copy 1 BC Children's and Women's Sunny Hill Education Resource Centre Redevelopment Available

Back to school, Communicating with your doctor, and, Cracking hospital life

https://libraries.phsa.ca/permalink/catalog109844
Northbrook, IL: Starlight Starbright Foundation , 2005. (Video) — 4 copies, 4 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH EF 850.6 STA 2005
In this documentary style DVD, teens share stories and advice for returning to school after a long absence. Topics include: * Getting back into the groove of school * Keeping up with homework & friends * What you can do about teasing and staring * Talking about your illness with kid…
Title
Back to school, Communicating with your doctor, and, Cracking hospital life
Place
Northbrook, IL
Publisher
Starlight Starbright Foundation
Year Published
2005
Physical Description
DVD
Topics
Coping with Chronic Illness Young Adult
Young Adults-Self-Help
Abstract
In this documentary style DVD, teens share stories and advice for returning to school after a long absence. Topics include: * Getting back into the groove of school * Keeping up with homework & friends * What you can do about teasing and staring * Talking about your illness with kids at school
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH EF 850.6 STA 2005
Copy 2 BC Children's and Women's Family Support & Resource Centre Available
Copy 3 BC Children's and Women's Family Support & Resource Centre Available
Copy 4 BC Children's and Women's Family Support & Resource Centre Available
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Kids with differences: The series

https://libraries.phsa.ca/permalink/catalog109855
Decker, David (Producer), Ramey Ogle, Lee (Writer). Lake Oswego, OR: Arnold Creek Productions , 2005. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR GN 800 DEC 2005
This DVD includes three programs to support children and young teens who have visible and non-visible health differences. When used in classrooms or presented to groups, these programs may be useful to educate general audiences to promote inclusion and understanding. ; Kids are featured as they enj…
Title
Kids with differences: The series
Author
Decker, David (Producer)
Ramey Ogle, Lee (Writer)
Place
Lake Oswego, OR
Publisher
Arnold Creek Productions
Year Published
2005
Physical Description
1 DVD (23 min.)
Topics
Physical Disability. Physically Challenged
Chronic Illness
Education. Schools
Asthma
Abstract
This DVD includes three programs to support children and young teens who have visible and non-visible health differences. When used in classrooms or presented to groups, these programs may be useful to educate general audiences to promote inclusion and understanding.
Kids are featured as they enjoy a variety of sports, recreational interests, hobbies, educational activities and have fun with friends. They talk openly about their lives, health and physical conditions, and what they'd like other kids to know about them.
Program 1: "Kids Just Want to Have Fun!" - Features kids with cerebral palsy, neuromuscular conditions, spina bifida, amputations, cleft lip and palate, and burn scars. For grades K - 5 (7 min.)
Program 2: "What's the Difference?" - Features kids with cerebral palsy, neuromuscular conditions, spina bifida, amputations, cleft lip and palate, and burn scars. For grades 6 - 10 (8 min.)
Program 3:"More Alike Than Different" - Features kids with hearing loss, asthma, diabetes, epilepsy and neurofibromatosis. For grades K - 7 (8 min.)
Notes
Ages 5 - 12
"DVD-R may not play on all players".
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR GN 800 DEC 2005
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

In sickness and in play: Children coping with chronic illness

https://libraries.phsa.ca/permalink/catalog109943
Clark, Cindy Dell. New Brunswick, NJ: Rutgers University Press , 2003. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CLA 2003
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes.|Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews
Title
In sickness and in play: Children coping with chronic illness
Author
Clark, Cindy Dell
Place
New Brunswick, NJ
Publisher
Rutgers University Press
Year Published
2003
Physical Description
Paperback, 225 p. : ill.
Topics
Coping with Chronic Illness-Children
Asthma
Abstract
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes.
Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews with families create an opportunity to learn and cope with the issues.
Notes
Includes notes, bibliography and index
ISBN
0813532701
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CLA 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Kids with chronic illness: The parent's burden

https://libraries.phsa.ca/permalink/catalog110283
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 ACQ 2003
This DVD shows how various families cope with their children's chronic illness.
Title
Kids with chronic illness: The parent's burden
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness in the Family
Abstract
This DVD shows how various families cope with their children's chronic illness.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 ACQ 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Teens with chronic illness: Through their eyes

https://libraries.phsa.ca/permalink/catalog110284
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 0 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH EF 850.6 AQU 2003
This DVD tells the story of teenagers living with chronic conditions such as sickle cell disease and spinal muscular atrophy.
Title
Teens with chronic illness: Through their eyes
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Topics
Coping with Chronic Illness Young Adult
Abstract
This DVD tells the story of teenagers living with chronic conditions such as sickle cell disease and spinal muscular atrophy.
Notes
*Audience: Health professionals working with teens.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH EF 850.6 AQU 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre On Loan, due January 12, 2017

Caring for kids with life threatening illness

https://libraries.phsa.ca/permalink/catalog110287
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 AQU 2003
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Title
Caring for kids with life threatening illness
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Caregiving
Abstract
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 AQU 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

An Autumn called Evan: Life with an exceptional child

https://libraries.phsa.ca/permalink/catalog110406
Klane, Deborah. Rockland, ME: Seven Coin Press , 2003. (Book) — 2 copies, 2 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Call Number
EF 850.5 KLA 2003
Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthday—a miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of …
Title
An Autumn called Evan: Life with an exceptional child
Author
Klane, Deborah
Corporate Author
Klane, Deborah
Place
Rockland, ME
Publisher
Seven Coin Press
Year Published
2003
Physical Description
Paperback, 210 p.
Topics
Coping with Chronic Illness
Coping with Chronic Illness-Children
Physical Disability. Physically Challenged
Abstract
Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthday—a miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of Evan's birth. We learn what it is like to be the parent of an exceptional child, as much as we learn what life is like for the child. To help illustrate the life of this family, their experiences, and emotions, Klane has included poems and drawings she created over the years, which have been sprinkled throughout the book, as well as family photographs. All of these are a touching reminder that this family is real and that the issues they face every day are huge. Too, this is as much a how-to book as it is the story of one family. There are chapters included on being an effective team player, taking care of yourself as a parent, learning to trust your own instincts, and how to stand up for yourself and your child when you in disagreement with the professionals. A glossary is included, as well as a medical timeline, which is a bit of a capsulation of the events Evan experienced during each year of his life to date.
ISBN
097009745X
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 KLA 2003
Copy 1 BC Children's and Women's Sunny Hill Education Resource Centre Redevelopment Available
Copy 2 BC Children's and Women's Sunny Hill Education Resource Centre Redevelopment Available
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WYNC Radio. New York, NY: Castle Works Inc. , 2003. In the Mix, the national PBS weekly series for teens by teens. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH EF 850.6 WYN 2003
This program addresses the most critical issues and problems concerning school, friends and family that challenge young people who are coping with serious and/or chronic conditions. Teens speak frankly from their experiences - sharing their concerns and advice with insight and humor. A boy describe…
Title
In the mix: Living with illness
Author
WYNC Radio
Edition
In the Mix, the national PBS weekly series for teens by teens
Place
New York, NY
Publisher
Castle Works Inc.
Year Published
2003
Physical Description
DVD: 30 min.
Topics
Coping with Chronic Illness ? Young Adult
Chronic Illness
Young Adults
Asthma
Abstract
This program addresses the most critical issues and problems concerning school, friends and family that challenge young people who are coping with serious and/or chronic conditions. Teens speak frankly from their experiences - sharing their concerns and advice with insight and humor. A boy describes his ways of dealing with Chrohn's; a girl copes with Juvenile Diabetes; and other teens that are in treatment for asthma, cancer and sickle cell anemia give facts, and dispel misconceptions. They all stress that they want to be treated as normal teenagers.
ISBN
1931843511
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH EF 850.6 WYN 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Youth Health Program. Vancouver, BC: Children's and Women's Health Centre of British Columbia , 2001. (Book) — 1 copy, 1 available
Audience
Professional
Agency
BC Children's and Women's
Location
Study & Learning Commons
Call Number
REF EF 850 FAM 2001
Created for youth and their families to help them prepare for adult care and adulthood. Divided into four sections, the Family Care Book asks the questions; What are our daily needs? Why do we have those needs? When do we start planning for adulthood? And, where can we find the answers and resource…
Title
Family care book
Corporate Author
Youth Health Program
Place
Vancouver, BC
Publisher
Children's and Women's Health Centre of British Columbia
Year Published
2001
Physical Description
3 ring binder, 11.25 x 11.25 in.
Topics
Coping with Chronic Illness in the Family
Chronic Illness
Health Records
Abstract
Created for youth and their families to help them prepare for adult care and adulthood. Divided into four sections, the Family Care Book asks the questions; What are our daily needs? Why do we have those needs? When do we start planning for adulthood? And, where can we find the answers and resources? Your home chart of 170 pages of forms to help you record and sort information, think about and plan for the future, and look up and connect with resources in your own community.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Study & Learning Commons
Audience
Professional
Call Number
REF EF 850 FAM 2001
Copy 2 BC Children's and Women's Study & Learning Commons REF Available

http://www.siblingsupport.org/

Seattle, WA: Sibling Support Project (Online)
Audience
Patient or Public
Agency
BC Children's and Women's
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. ; We believe that disabilities, illness, and mental health issues affect the lives of all family members. Conseq…
Title
Sibling Support Project
Place
Seattle, WA
Publisher
Sibling Support Project
Topics
Coping with Chronic Illness in the Family
Family
Children Coping with Family Illness
Sibling Relationships
Siblings of Children with Disabilities
Abstract
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
We believe that disabilities, illness, and mental health issues affect the lives of all family members. Consequently, we want to increase the peer support and information opportunities for brothers and sisters of people with special needs and to increase parents' and providers' understanding of sibling issues.
Our mission is accomplished by training local service providers on how to create community-based peer support programs for young siblings; hosting workshops, social network sites, and websites for young and adult siblings; and increasing parents' and providers' awareness of siblings' unique, lifelong, and ever-changing concerns through workshops, websites, and written materials.
Material Type
Online
Agency
BC Children's and Women's
URL
http://www.siblingsupport.org/
Audience
Patient or Public

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