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But you look good: How to encourage and understand people living with illness and pain

https://libraries.phsa.ca/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FM 830 CON 2014
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a
Title
But you look good: How to encourage and understand people living with illness and pain
Author
Connell, Wayne
Connell, Sherri
Place
Parker, Colorado
Publisher
Invisible Disabilities Association
Year Published
2014
Physical Description
Softcover ; 85 p.
Topics
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FM 830 CON 2014
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Caring for kids with life threatening illness

https://libraries.phsa.ca/permalink/catalog110287
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 AQU 2003
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Title
Caring for kids with life threatening illness
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Caregiving
Abstract
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 AQU 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Central sensitization and sensitivity syndromes

https://libraries.phsa.ca/permalink/catalog122202
Titani, Amy. McFarland & Company, Inc., Publishers , 2017. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 TIT 2016
Millions of people experience symptoms of central sensitization (CS) and central sensitivity syndromes (CSS) such as chronic fatigue syndrome, fibromyalgia and multiple chemical sensitivities. Yet many lack diagnoses, education and resources. Without proper support, some patients may become withdra…
Title
Central sensitization and sensitivity syndromes
Author
Titani, Amy
Publisher
McFarland & Company, Inc., Publishers
Year Published
2017
Physical Description
Softcover ; 241 p.
Series
McFarland Health Topics
Topics
Chronic Illness
Abstract
Millions of people experience symptoms of central sensitization (CS) and central sensitivity syndromes (CSS) such as chronic fatigue syndrome, fibromyalgia and multiple chemical sensitivities. Yet many lack diagnoses, education and resources. Without proper support, some patients may become withdrawn, suffering needlessly and possibly developing mental illness. Covering the syndromes within the context of central sensitization (CS), this book provides candid personal experience, strategies for symptom management, and suggested methods for coping and long-term healing, with easy-to-understand science.
Amy Titani has been teaching and providing peer support to others with Central Sensitization and Central Sensitivity Syndromes since 2014. She lives in Vancouver, British Columbia, Canada.
ISBN
9781476668635
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 TIT 2016
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The chronic illness workbook : Strategies and solutions for taking back your life

https://libraries.phsa.ca/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 FEN 2012
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia
Title
The chronic illness workbook : Strategies and solutions for taking back your life
Author
Fennell, Patricia A.
Place
Latham, New York
Publisher
Albany Health Management Publishing
Year Published
2012
Physical Description
Softcover ; 253 p.
Topics
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 FEN 2012
copy 1 BC Children's & Women's Family Support & Resource Centre Available
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Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers

https://libraries.phsa.ca/permalink/catalog111592
Lauder, G.R., Massey, Roslyn. Bloomington, IN: Xlibris Corporation , 2010. (Book) — 10 copies, 10 available
Audience
Patient or Public
Featured
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH FM 800 LAU 2010a
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The …
Title
Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers
Author
Lauder, G.R.
Massey, Roslyn
Place
Bloomington, IN
Publisher
Xlibris Corporation
Year Published
2010
Physical Description
Softcover, 100 pages.
Topics
Coping with Pain
Coping with Chronic Illness Young Adult
Pain
Pain
Abstract
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers– which included those who have been treated for CRPS – to provide their feedback.
ISBN
9781453589953
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Featured
Call Number
YOUTH FM 800 LAU 2010a
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Copy 2 BC Children's and Women's Family Support & Resource Centre Available
Copy 3 BC Children's and Women's Family Support & Resource Centre Available
Copy 4 BC Children's and Women's Family Support & Resource Centre Available
Copy 5 BC Children's and Women's Family Support & Resource Centre Available
Copy 6 BC Children's and Women's Family Support & Resource Centre Available
Copy 7 BC Children's and Women's Family Support & Resource Centre Available
Copy 8 BC Children's and Women's Family Support & Resource Centre Available
Copy 10 BC Children's and Women's Family Support & Resource Centre Available
Copy 11 BC Children's and Women's Family Support & Resource Centre Available
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Digging deep: A journal for young people facing health challenges

https://libraries.phsa.ca/permalink/catalog113126
Offner, Rose, Brisson, Sheri. San Francisco, CA: Resonance House , 2013. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
Title
Digging deep: A journal for young people facing health challenges
Author
Offner, Rose
Brisson, Sheri
Place
San Francisco, CA
Publisher
Resonance House
Year Published
2013
Physical Description
Softcover: 137 p.
Topics
Coping with Chronic Illness-Children
Abstract
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
ISBN
9780989103909
Language
English
Material Type
Book
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Lost
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://libraries.phsa.ca/permalink/catalog112348
Kaufman, Miriam. Toronto, ON: Firefly Books Ltd , 2012. 3rd ed. (Book) — 2 copies, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 KAU 2012
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Title
Easy for you to say: Q & A's for teens living with chronic illness or disability
Author
Kaufman, Miriam
Edition
3rd ed
Place
Toronto, ON
Publisher
Firefly Books Ltd
Year Published
2012
Physical Description
Softcover: 309 p.
Topics
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Agency
BC Children's and Women's
Audience
Patient or Public
Call Number
YOUTH EF 850.6 KAU 2012
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Copy 2 BC Children's and Women's Family Support & Resource Centre On Loan, due January 08, 2020
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Extreme parenting: Parenting your child with a chronic illness

https://libraries.phsa.ca/permalink/catalog112749
Dempsey, Sharon. Philadelphia, PA: Jessica Kingsley Publishers , 2008. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GK 600 DEM 2008
Title
Extreme parenting: Parenting your child with a chronic illness
Author
Dempsey, Sharon
Place
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Year Published
2008
Physical Description
Softcover: 201 p.
Topics
Chronic Illness
Parenting
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GK 600 DEM 2008
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Youth Health Program. Vancouver, BC: Children's and Women's Health Centre of British Columbia , 2001. (Book) — 1 copy, 1 available
Audience
Professional
Agency
BC Children's and Women's
Location
Study & Learning Commons
Call Number
REF EF 850 FAM 2001
Created for youth and their families to help them prepare for adult care and adulthood. Divided into four sections, the Family Care Book asks the questions; What are our daily needs? Why do we have those needs? When do we start planning for adulthood? And, where can we find the answers and resource…
Title
Family care book
Corporate Author
Youth Health Program
Place
Vancouver, BC
Publisher
Children's and Women's Health Centre of British Columbia
Year Published
2001
Physical Description
3 ring binder, 11.25 x 11.25 in.
Topics
Coping with Chronic Illness in the Family
Chronic Illness
Health Records
Abstract
Created for youth and their families to help them prepare for adult care and adulthood. Divided into four sections, the Family Care Book asks the questions; What are our daily needs? Why do we have those needs? When do we start planning for adulthood? And, where can we find the answers and resources? Your home chart of 170 pages of forms to help you record and sort information, think about and plan for the future, and look up and connect with resources in your own community.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Study & Learning Commons
Audience
Professional
Call Number
REF EF 850 FAM 2001
Copy 2 BC Children's and Women's Study & Learning Commons REF Available

Fight like a mother: How to be a mom with a chronic illness

https://libraries.phsa.ca/permalink/catalog122238
Decker, Joslyne C. CreateSpace Independent Publishing Platform , 2014. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 DEC 2014
"FIGHT LIKE A MOTHER is a survival guide, offering personal stories, practical advice, tips, and resources on how to be a mom with a chronic illness. Full of the kind of candid advice you would expect from your BFF, this book gives parents with chronic illness hope, help, and a good laugh"--From
Title
Fight like a mother: How to be a mom with a chronic illness
Author
Decker, Joslyne C.
Publisher
CreateSpace Independent Publishing Platform
Year Published
2014
Physical Description
Softcover ; vii, 138 p.
Topics
Chronic Illness
Fibromyalgia. Fibrositis
Abstract
"FIGHT LIKE A MOTHER is a survival guide, offering personal stories, practical advice, tips, and resources on how to be a mom with a chronic illness. Full of the kind of candid advice you would expect from your BFF, this book gives parents with chronic illness hope, help, and a good laugh"--From the book cover
ISBN
9781500100308
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 DEC 2014
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://libraries.phsa.ca/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 FER 2016
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Title
Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion
Author
Fernando, Peter
Place
Boulder
Publisher
Shambhala Publications, Inc.
Year Published
2016
Physical Description
Softcover ; ix, 222 p.
Topics
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 FER 2016
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Good-bye, bumps! Talking to what's bugging you

https://libraries.phsa.ca/permalink/catalog119793
Dyer, Wayne W., Dyer, Saje, Heller Budnick, Stacy. India: Hay House Publishers India , 2014. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them,…
Title
Good-bye, bumps! Talking to what's bugging you
Author
Dyer, Wayne W.
Dyer, Saje
Heller Budnick, Stacy
Place
India
Publisher
Hay House Publishers India
Year Published
2014
Physical Description
Hardcover, ill., 29 p.
Topics
Coping with Chronic Illness-Children
Fiction
Abstract
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them, they can change their attitude toward it and not allow it to have power over them.
ISBN
9781401945855
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Help with hospice & palliative care

https://libraries.phsa.ca/permalink/catalog114741
Naparstek, Belleruth (author & narrator). Health Journeys | Playaway , 2016. (Audio, Pre-loaded Media) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
PLAY EF 860 NAP 2016
This imagery helps end-of life patients find acceptance, forgive self and others, say goodbye, prepare for the journey and bring closure to unresolved issues. Made to help loved ones as well. Track 1: Introduction; Track 2: Guided Imagery; Track 3: Affirmations.
Title
Help with hospice & palliative care
Author
Naparstek, Belleruth (author & narrator)
Publisher
Health Journeys
Playaway
Year Published
2016
Physical Description
1 playaway, 1 AAA battery: 01:07:26
Topics
Palliative Care
Coping with Chronic Illness in the Family
Coping with Death
Abstract
This imagery helps end-of life patients find acceptance, forgive self and others, say goodbye, prepare for the journey and bring closure to unresolved issues. Made to help loved ones as well. Track 1: Introduction; Track 2: Guided Imagery; Track 3: Affirmations.
Notes
Playaway is a better listening experience combining as easy-to-use player with an entire audiobook.
ISBN
9781509413188
Language
English
Material Type
Audio
Pre-loaded Media
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
PLAY EF 860 NAP 2016
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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How many marbles do you have? Helping children understand the limitations of those with chronic fatigue syndrome and fibromyalgia

https://libraries.phsa.ca/permalink/catalog122255
Malott, Melinda. Xlibris , 2014. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 MAL 2014
The book uses marbles, a toy all children are familiar with, as a measure of the mother's limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alte…
Title
How many marbles do you have? Helping children understand the limitations of those with chronic fatigue syndrome and fibromyalgia
Author
Malott, Melinda
Publisher
Xlibris
Year Published
2014
Physical Description
Softcover ; [19 p.], illustrations
Topics
Chronic Fatigue Syndrome
Chronic Pain
Chronic Illness
Coping with Chronic Illness-Children
Abstract
The book uses marbles, a toy all children are familiar with, as a measure of the mother's limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alternate ways to perform tasks that use less energy, and postexertional malaise. The concepts in the book are relevant to someone with one or both illnesses, and it can be applied to other physically limiting conditions as well. The book reminds the reader that although illness may limit a mother's activities, it never diminishes a mother's love for her children. The book is fun and yet realistic and will capture your child's heart.
ISBN
9781499094459
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR EF 850.5 MAL 2014
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://libraries.phsa.ca/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 BER 2010
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Title
How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers
Author
Bernhard, Toni
Place
Somerville, MA
Publisher
Wisdom Publications
Year Published
2018
Physical Description
Softcover ; xvii, 191 p.
Topics
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
ISBN
9780861716265
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 BER 2010
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How to help children through a parent's serious illness: Supportive, practical advice from a leading child life specialist

https://libraries.phsa.ca/permalink/catalog112422
McCue, Kathleen. New York, NY: St. Martin's Griffin , 2011. (Book) — 1 copy, 1 available
Audience
Patient or Public
Professional
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 860.5 MCC 2011
Fully revised and updated, this new edition explores the major issues and developments from the last decade that affect children today, including the dangers and opportunities of the Internet, a deeper understanding of how hereditary diseases affect children, the impact of the nation's explosive gr…
Title
How to help children through a parent's serious illness: Supportive, practical advice from a leading child life specialist
Author
McCue, Kathleen
Place
New York, NY
Publisher
St. Martin's Griffin
Year Published
2011
Physical Description
Softcover: 331 p.
Topics
Chronic Illness
Children Coping with Family Illness
Children's Emotions
Abstract
Fully revised and updated, this new edition explores the major issues and developments from the last decade that affect children today, including the dangers and opportunities of the Internet, a deeper understanding of how hereditary diseases affect children, the impact of the nation's explosive growth in single-parent families, and new insights into how family trauma and a parent’s mental illness may affect children.
ISBN
9780312697686
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Professional
Call Number
EF 860.5 MCC 2011
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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How to live well with chronic pain and illness: A mindful guide

https://libraries.phsa.ca/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 BER 2015
Comfort, understanding, and advice for those who are suffering?and those who care for them.|Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and
Title
How to live well with chronic pain and illness: A mindful guide
Author
Bernhard, Toni
Place
Somerville, MA
Publisher
Wisdom Publications
Year Published
2015
Physical Description
337 pages
Topics
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 BER 2015
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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In sickness and in play: Children coping with chronic illness

https://libraries.phsa.ca/permalink/catalog109943
Clark, Cindy Dell. New Brunswick, NJ: Rutgers University Press , 2003. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CLA 2003
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes.|Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews
Title
In sickness and in play: Children coping with chronic illness
Author
Clark, Cindy Dell
Place
New Brunswick, NJ
Publisher
Rutgers University Press
Year Published
2003
Physical Description
Paperback, 225 p. : ill.
Topics
Coping with Chronic Illness-Children
Asthma
Abstract
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes.
Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews with families create an opportunity to learn and cope with the issues.
Notes
Includes notes, bibliography and index
ISBN
0813532701
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CLA 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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WYNC Radio. New York, NY: Castle Works Inc. , 2003. In the Mix, the national PBS weekly series for teens by teens. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH EF 850.6 WYN 2003
This program addresses the most critical issues and problems concerning school, friends and family that challenge young people who are coping with serious and/or chronic conditions. Teens speak frankly from their experiences - sharing their concerns and advice with insight and humor. A boy describe…
Title
In the mix: Living with illness
Author
WYNC Radio
Edition
In the Mix, the national PBS weekly series for teens by teens
Place
New York, NY
Publisher
Castle Works Inc.
Year Published
2003
Physical Description
DVD: 30 min.
Topics
Coping with Chronic Illness ? Young Adult
Chronic Illness
Young Adults
Asthma
Abstract
This program addresses the most critical issues and problems concerning school, friends and family that challenge young people who are coping with serious and/or chronic conditions. Teens speak frankly from their experiences - sharing their concerns and advice with insight and humor. A boy describes his ways of dealing with Chrohn's; a girl copes with Juvenile Diabetes; and other teens that are in treatment for asthma, cancer and sickle cell anemia give facts, and dispel misconceptions. They all stress that they want to be treated as normal teenagers.
ISBN
1931843511
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH EF 850.6 WYN 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Kids with chronic illness: The parent's burden

https://libraries.phsa.ca/permalink/catalog110283
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 ACQ 2003
This DVD shows how various families cope with their children's chronic illness.
Title
Kids with chronic illness: The parent's burden
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness in the Family
Abstract
This DVD shows how various families cope with their children's chronic illness.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 ACQ 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Kids with differences: The series

https://libraries.phsa.ca/permalink/catalog109855
Decker, David (Producer), Ramey Ogle, Lee (Writer). Lake Oswego, OR: Arnold Creek Productions , 2005. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR GN 800 DEC 2005
This DVD includes three programs to support children and young teens who have visible and non-visible health differences. When used in classrooms or presented to groups, these programs may be useful to educate general audiences to promote inclusion and understanding. ; Kids are featured as they enj…
Title
Kids with differences: The series
Author
Decker, David (Producer)
Ramey Ogle, Lee (Writer)
Place
Lake Oswego, OR
Publisher
Arnold Creek Productions
Year Published
2005
Physical Description
1 DVD (23 min.)
Topics
Physical Disability. Physically Challenged
Chronic Illness
Education. Schools
Asthma
Abstract
This DVD includes three programs to support children and young teens who have visible and non-visible health differences. When used in classrooms or presented to groups, these programs may be useful to educate general audiences to promote inclusion and understanding.
Kids are featured as they enjoy a variety of sports, recreational interests, hobbies, educational activities and have fun with friends. They talk openly about their lives, health and physical conditions, and what they'd like other kids to know about them.
Program 1: "Kids Just Want to Have Fun!" - Features kids with cerebral palsy, neuromuscular conditions, spina bifida, amputations, cleft lip and palate, and burn scars. For grades K - 5 (7 min.)
Program 2: "What's the Difference?" - Features kids with cerebral palsy, neuromuscular conditions, spina bifida, amputations, cleft lip and palate, and burn scars. For grades 6 - 10 (8 min.)
Program 3:"More Alike Than Different" - Features kids with hearing loss, asthma, diabetes, epilepsy and neurofibromatosis. For grades K - 7 (8 min.)
Notes
Ages 5 - 12
"DVD-R may not play on all players".
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR GN 800 DEC 2005
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Living a healthy life with chronic conditions : For ongoing physical and mental health conditions

https://libraries.phsa.ca/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 LOR 2013
doing the things they need and want to do.|"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms
Title
Living a healthy life with chronic conditions : For ongoing physical and mental health conditions
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place
Boulder, CO
Publisher
Bull Publishing Company
Year Published
2013
Physical Description
Softcover ; vii, 368 p.
Topics
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 LOR 2013

Mitochondria and the future of medicine: The key to understanding disease, chronic illness, aging, and life itself

https://libraries.phsa.ca/permalink/catalog122233
Know, Lee. White River Junction, Vermont: Chelsea Green Publishing , 2018. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FA 100 KNO 2018
dietary therapy, and how to implement their use successfully. Mitochondria and the Future of Medicine is an invaluable resource for practitioners interested in mitochondrial medicine and the true roots of chronic illness and disease, as well as anyone interested in optimizing their health."--Provided by
Title
Mitochondria and the future of medicine: The key to understanding disease, chronic illness, aging, and life itself
Author
Know, Lee
Place
White River Junction, Vermont
Publisher
Chelsea Green Publishing
Year Published
2018
Physical Description
Softcover ; 257 p., illustrations
Topics
Cells
Cancer
Chronic Illness
Alzheimer's Disease
Heart/Heart Diseases. Cardiology
Hearing. Hard of Hearing
Fertility/Infertility
Abstract
Why do we age? Why does cancer develop? What's the connection between heart failure and Alzheimer's disease, or infertility and hearing loss? Can we extend lifespan, and if so, how? What is the Exercise Paradox? Why do antioxidant supplements sometimes do more harm than good? Many will be amazed to learn that all these questions, and many more, can be answered by a single point of discussion: mitochondria and bioenergetics.
"In Mitochondria and the Future of Medicine, Naturopathic Doctor Lee Know tells the epic story of mitochondria, the widely misunderstood and often-overlooked powerhouses of our cells. The legendary saga began over two billion years ago, when one bacterium entered another without being digested, which would evolve to create the first mitochondrion. Since then, for life to exist beyond single-celled bacteria, it's the mitochondria that have been responsible for this life-giving energy. By understanding how our mitochondria work, in fact, it is possible to add years to our lives, and life to our years.
"Current research, however, has revealed a dark side: many seemingly disconnected degenerative diseases have tangled roots in dysfunctional mitochondria. However, modern research has also endowed us with the knowledge on how to optimize its function, which is of critical importance to our health and longevity. Lee Know offers cutting-edge information on supplementation and lifestyle changes for mitochondrial optimization, such as CoQ10, D-Ribose, cannabinoids, and ketogenic dietary therapy, and how to implement their use successfully. Mitochondria and the Future of Medicine is an invaluable resource for practitioners interested in mitochondrial medicine and the true roots of chronic illness and disease, as well as anyone interested in optimizing their health."--Provided by publisher.
ISBN
9781603587679
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FA 100 KNO 2018
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://libraries.phsa.ca/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 CHA 2014 STACKS
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Title
Mon enfant a une maladie chronique : Stratégies, ressources, moyens
Author
Chartre, Marie-Eve
Gagne, Johanne
Place
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Year Published
2014
Physical Description
Paperback, 127 p.
Topics
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 CHA 2014 STACKS
Copy 1 BC Children's and Women's Family Support & Resource Centre STACKS Available
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On Trac: Transitioning responsibly to adult care

https://libraries.phsa.ca/permalink/catalog112871

http://ontracbc.ca/

Vancouver, BC: BC Children's Hospital , 2014. (Online)
Audience
Patient or Public
Agency
BC Children's and Women's
ON TRAC is a province-wide, multifaceted Transition Initiative to support comprehensive, continuous, accessible, sustainable and developmentally-appropriate care to youth and young adults (ages 12-24 years) with chronic health conditions and/or disabilities (CHC/Ds) as they plan, prepare and tran…
Title
On Trac: Transitioning responsibly to adult care
Place
Vancouver, BC
Publisher
BC Children's Hospital
Year Published
2014
Topics
Chronic Illness
Young Adults
Abstract
ON TRAC is a province-wide, multifaceted Transition Initiative to support comprehensive, continuous, accessible, sustainable and developmentally-appropriate care to youth and young adults (ages 12-24 years) with chronic health conditions and/or disabilities (CHC/Ds) as they plan, prepare and transfer from pediatric to adult health care services.
Material Type
Online
Agency
BC Children's and Women's
URL
http://ontracbc.ca/
Audience
Patient or Public

Parenting children with health issues: Essential tools, tips, and tactics for raising kids with chronic illness, medical conditions & special healthcare needs

https://libraries.phsa.ca/permalink/catalog110357
Cline, Foster W, Greene, Lisa C. Golden, CO: Love and Logic Institute, Inc. , 2007. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
GK 600 CLI 2007
Whether a child struggles with weight problems, diabetes, cancer or any other health issue, parents will learn the essential parenting skills they need to help their child comply with medical requirements, cope well with health challenges, and live a hope-filled life. This book will teach parents a…
Title
Parenting children with health issues: Essential tools, tips, and tactics for raising kids with chronic illness, medical conditions & special healthcare needs
Author
Cline, Foster W
Greene, Lisa C.
Place
Golden, CO
Publisher
Love and Logic Institute, Inc.
Year Published
2007
Physical Description
Paperback: 343 pages
Topics
Parenting
Chronic Illness
Abstract
Whether a child struggles with weight problems, diabetes, cancer or any other health issue, parents will learn the essential parenting skills they need to help their child comply with medical requirements, cope well with health challenges, and live a hope-filled life. This book will teach parents and caregivers how to: Encourage your child to love life despite health challenges; Handle refusal to take medication and do medical treatments; Skillfully respond to your child’s special emotional needs; Avoid power struggles and other common parenting traps; Promote responsibility for health care without nagging or lecturing; Navigate sibling, family and couple relationship issues; Enable your child to make good self-care decisions.
ISBN
9781930429895
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
GK 600 CLI 2007
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Patient expert: mon témoignage face à la maladie chronique

https://libraries.phsa.ca/permalink/catalog122157
Balez, Èric, Bloch, Hélène. Odile Jacob , 2015. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FK 625 BAL 2015
La maladie m'a cueilli à l'aube de mes quatorze ans. MICI : maladie inflammatoire chronique intestinale. De bien gros mots pour un enfant de mon âge, de bien grands maux pour l'homme qu'elle me fit devenir.Je l'ai d'abord subie puis je l'ai fuie, mais elle s'était définitivement installée, j'ai fin…
Title
Patient expert: mon témoignage face à la maladie chronique
Alternate Title
[Patient expert: mon temoignage face a la maladie chronique]
Author
Balez, Èric
Bloch, Hélène
Publisher
Odile Jacob
Year Published
2015
Physical Description
Softcover ; 126 p.
Topics
Inflammatory Bowel Disease
Inflammatory Bowel Disease-Coping
Youth with Disabilities
Chronic Illness
Abstract
La maladie m'a cueilli à l'aube de mes quatorze ans. MICI : maladie inflammatoire chronique intestinale. De bien gros mots pour un enfant de mon âge, de bien grands maux pour l'homme qu'elle me fit devenir.Je l'ai d'abord subie puis je l'ai fuie, mais elle s'était définitivement installée, j'ai finalement décidé de l'apprivoiser. Ce livre est né de mon désir d'apprendre à partager, à transmettre et à aider. Aboutissement d'une certitude et d'une volonté, il témoigne de l'absolue nécessité de faire exister un lien entre le patient qui sait et celui qui, bientôt, saura. Je l'ai écrit pour que chaque patient atteint comme moi d'une maladie chronique puisse, au-delà des maux, en devenant expert, rester maître de sa vie.
ISBN
9782738132635
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FK 625 BAL 2015
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Positive coping with health conditions: A self-care workbook

https://libraries.phsa.ca/permalink/catalog111156

http://www.comh.ca/publications/resources/pub_pchc/PCHC%20Workbook.pdf

Bilsker, Dan, Samra, Joti, Goldner, Elliot. Burnaby, BC: Consortium for Organizational Mental Healthcare, Simon Fraser University , 2009. (Book, Online)
Audience
Patient or Public
Agency
BC Children's and Women's
URL Notes
CLick on the link to view
This is a self-care manual authored by scientist-practitioners with expertise in issues relating to coping with health conditions. This manual is designed for individuals who deal with health conditions, including patients, physicians, psychologists, nurses, rehabilitation professionals and resear…
Title
Positive coping with health conditions: A self-care workbook
Author
Bilsker, Dan
Samra, Joti
Goldner, Elliot
Place
Burnaby, BC
Publisher
Consortium for Organizational Mental Healthcare, Simon Fraser University
Year Published
2009
Physical Description
112 page PDF File
Topics
Coping with Chronic Illness
Stress
Stress Reduction
Stress and Health Effects
Stress Reduction Techniques
Abstract
This is a self-care manual authored by scientist-practitioners with expertise in issues relating to coping with health conditions. This manual is designed for individuals who deal with health conditions, including patients, physicians, psychologists, nurses, rehabilitation professionals and researchers.
Material Type
Book
Online
Agency
BC Children's and Women's
URL
http://www.comh.ca/publications/resources/pub_pchc/PCHC%20Workbook.pdf
URL Notes
CLick on the link to view
Audience
Patient or Public

Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://libraries.phsa.ca/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CAR 2016
Title
Quand la vie se fragilise: Un guide pour vous et vos proches aidants
Author
Cardinal Remete, France
Place
Montreal, QC
Publisher
Multimondes Inc.
Year Published
2016
Physical Description
Paperback, 311 p.
Topics
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CAR 2016
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Trouble with illness, The: How illness and disability affect relationships

https://libraries.phsa.ca/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 SEG 2017
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help. ; Illness or disability can isolate people by creating vast differences in their experiences where previously t…
Title
Trouble with illness, The: How illness and disability affect relationships
Author
Segal, Julia
Place
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Year Published
2017
Physical Description
Softcover ; 312 p.
Topics
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 SEG 2017
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Understanding living with a chronic illness: Written by doctors for kids

https://libraries.phsa.ca/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 800 REN 2018
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Title
Understanding living with a chronic illness: Written by doctors for kids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place
New York, NY
Publisher
Jumo
Year Published
2018
Physical Description
Softcover; 16 p.
Topics
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR EF 800 REN 2018
copy 1 BC Children's and Women's Family Support & Resource Centre Available

La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://libraries.phsa.ca/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 HUM 2012 STACKS
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Title
La vie...avant, pendant et après: Les soins palliatifs pédiatriques
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place
Montreal, QC
Publisher
CHU Sainte-Justine
Year Published
2012
Physical Description
Paperback, 335 p.
Topics
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 HUM 2012 STACKS
copy 1 BC Children's and Women's Family Support & Resource Centre STACKS Available
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When someone you love has a chronic illness: Hope and help for those providing support

https://libraries.phsa.ca/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 GRE 2012
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and
Title
When someone you love has a chronic illness: Hope and help for those providing support
Author
McClintock Greenberg, Tamara
Place
Springville, UT
Publisher
Plain Sight Publishing
Year Published
2012
Physical Description
Softcover ; xiv, 157 p.
Topics
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 GRE 2012
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://libraries.phsa.ca/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 CHR 2014
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates
Title
Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place
Denver, Colorado
Publisher
Outskirts Press, Inc.
Year Published
2014
Physical Description
Softcover ; [18 p.], illustrations
Topics
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
ISBN
9781478732969
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR EF 850.5 CHR 2014
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You don't look sick! : Living well with invisible chronic illness

https://libraries.phsa.ca/permalink/catalog122326
Selak, Joy H., Overman, Steven S. New York: Demos Health 2nd Ed. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 SEL 2013
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical
Title
You don't look sick! : Living well with invisible chronic illness
Author
Selak, Joy H.
Overman, Steven S.
Edition
2nd Ed
Place
New York
Publisher
Demos Health
Physical Description
Softcover ; xxviii, 166 p.
Topics
Chronic Illness
Abstract
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher
ISBN
9781936303427
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 SEL 2013
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Young, sick, and invisible: A skeptic's journey with chronic illness

https://libraries.phsa.ca/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 800 BUL 2016
like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.|"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities
Title
Young, sick, and invisible: A skeptic's journey with chronic illness
Author
Bula, Ania
Place
Durham, North Carolina
Publisher
Pitchstone Publishing
Year Published
2016
Physical Description
Softcover ; 224 p.
Topics
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher.
ISBN
9781634310734
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 800 BUL 2016
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