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Caring for kids with life threatening illness

https://libraries.phsa.ca/permalink/catalog110287
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 AQU 2003
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Title
Caring for kids with life threatening illness
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Caregiving
Abstract
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 AQU 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers

https://libraries.phsa.ca/permalink/catalog111592
Lauder, G.R., Massey, Roslyn. Bloomington, IN: Xlibris Corporation , 2010. (Book) — 10 copies, 10 available
Audience
Patient or Public
Featured
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH FM 800 LAU 2010a
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The …
Title
Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers
Author
Lauder, G.R.
Massey, Roslyn
Place
Bloomington, IN
Publisher
Xlibris Corporation
Year Published
2010
Physical Description
Softcover, 100 pages.
Topics
Coping with Pain
Coping with Chronic Illness Young Adult
Pain
Pain
Abstract
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers– which included those who have been treated for CRPS – to provide their feedback.
ISBN
9781453589953
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Featured
Call Number
YOUTH FM 800 LAU 2010a
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Copy 2 BC Children's and Women's Family Support & Resource Centre Available
Copy 3 BC Children's and Women's Family Support & Resource Centre Available
Copy 4 BC Children's and Women's Family Support & Resource Centre Available
Copy 5 BC Children's and Women's Family Support & Resource Centre Available
Copy 6 BC Children's and Women's Family Support & Resource Centre Available
Copy 7 BC Children's and Women's Family Support & Resource Centre Available
Copy 8 BC Children's and Women's Family Support & Resource Centre Available
Copy 10 BC Children's and Women's Family Support & Resource Centre Available
Copy 11 BC Children's and Women's Family Support & Resource Centre Available
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Digging deep: A journal for young people facing health challenges

https://libraries.phsa.ca/permalink/catalog113126
Offner, Rose, Brisson, Sheri. San Francisco, CA: Resonance House , 2013. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
Title
Digging deep: A journal for young people facing health challenges
Author
Offner, Rose
Brisson, Sheri
Place
San Francisco, CA
Publisher
Resonance House
Year Published
2013
Physical Description
Softcover: 137 p.
Topics
Coping with Chronic Illness-Children
Abstract
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
ISBN
9780989103909
Language
English
Material Type
Book
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Lost
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://libraries.phsa.ca/permalink/catalog112348
Kaufman, Miriam. Toronto, ON: Firefly Books Ltd , 2012. 3rd ed. (Book) — 2 copies, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 KAU 2012
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Title
Easy for you to say: Q & A's for teens living with chronic illness or disability
Author
Kaufman, Miriam
Edition
3rd ed
Place
Toronto, ON
Publisher
Firefly Books Ltd
Year Published
2012
Physical Description
Softcover: 309 p.
Topics
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Agency
BC Children's and Women's
Audience
Patient or Public
Call Number
YOUTH EF 850.6 KAU 2012
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Copy 2 BC Children's and Women's Family Support & Resource Centre On Loan, due January 08, 2020
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Youth Health Program. Vancouver, BC: Children's and Women's Health Centre of British Columbia , 2001. (Book) — 1 copy, 1 available
Audience
Professional
Agency
BC Children's and Women's
Location
Study & Learning Commons
Call Number
REF EF 850 FAM 2001
Created for youth and their families to help them prepare for adult care and adulthood. Divided into four sections, the Family Care Book asks the questions; What are our daily needs? Why do we have those needs? When do we start planning for adulthood? And, where can we find the answers and resource…
Title
Family care book
Corporate Author
Youth Health Program
Place
Vancouver, BC
Publisher
Children's and Women's Health Centre of British Columbia
Year Published
2001
Physical Description
3 ring binder, 11.25 x 11.25 in.
Topics
Coping with Chronic Illness in the Family
Chronic Illness
Health Records
Abstract
Created for youth and their families to help them prepare for adult care and adulthood. Divided into four sections, the Family Care Book asks the questions; What are our daily needs? Why do we have those needs? When do we start planning for adulthood? And, where can we find the answers and resources? Your home chart of 170 pages of forms to help you record and sort information, think about and plan for the future, and look up and connect with resources in your own community.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Study & Learning Commons
Audience
Professional
Call Number
REF EF 850 FAM 2001
Copy 2 BC Children's and Women's Study & Learning Commons REF Available

Good-bye, bumps! Talking to what's bugging you

https://libraries.phsa.ca/permalink/catalog119793
Dyer, Wayne W., Dyer, Saje, Heller Budnick, Stacy. India: Hay House Publishers India , 2014. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them,…
Title
Good-bye, bumps! Talking to what's bugging you
Author
Dyer, Wayne W.
Dyer, Saje
Heller Budnick, Stacy
Place
India
Publisher
Hay House Publishers India
Year Published
2014
Physical Description
Hardcover, ill., 29 p.
Topics
Coping with Chronic Illness-Children
Fiction
Abstract
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them, they can change their attitude toward it and not allow it to have power over them.
ISBN
9781401945855
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Help with hospice & palliative care

https://libraries.phsa.ca/permalink/catalog114741
Naparstek, Belleruth (author & narrator). Health Journeys | Playaway , 2016. (Audio, Pre-loaded Media) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
PLAY EF 860 NAP 2016
This imagery helps end-of life patients find acceptance, forgive self and others, say goodbye, prepare for the journey and bring closure to unresolved issues. Made to help loved ones as well. Track 1: Introduction; Track 2: Guided Imagery; Track 3: Affirmations.
Title
Help with hospice & palliative care
Author
Naparstek, Belleruth (author & narrator)
Publisher
Health Journeys
Playaway
Year Published
2016
Physical Description
1 playaway, 1 AAA battery: 01:07:26
Topics
Palliative Care
Coping with Chronic Illness in the Family
Coping with Death
Abstract
This imagery helps end-of life patients find acceptance, forgive self and others, say goodbye, prepare for the journey and bring closure to unresolved issues. Made to help loved ones as well. Track 1: Introduction; Track 2: Guided Imagery; Track 3: Affirmations.
Notes
Playaway is a better listening experience combining as easy-to-use player with an entire audiobook.
ISBN
9781509413188
Language
English
Material Type
Audio
Pre-loaded Media
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
PLAY EF 860 NAP 2016
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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How many marbles do you have? Helping children understand the limitations of those with chronic fatigue syndrome and fibromyalgia

https://libraries.phsa.ca/permalink/catalog122255
Malott, Melinda. Xlibris , 2014. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 MAL 2014
The book uses marbles, a toy all children are familiar with, as a measure of the mother's limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alte…
Title
How many marbles do you have? Helping children understand the limitations of those with chronic fatigue syndrome and fibromyalgia
Author
Malott, Melinda
Publisher
Xlibris
Year Published
2014
Physical Description
Softcover ; [19 p.], illustrations
Topics
Chronic Fatigue Syndrome
Chronic Pain
Chronic Illness
Coping with Chronic Illness-Children
Abstract
The book uses marbles, a toy all children are familiar with, as a measure of the mother's limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alternate ways to perform tasks that use less energy, and postexertional malaise. The concepts in the book are relevant to someone with one or both illnesses, and it can be applied to other physically limiting conditions as well. The book reminds the reader that although illness may limit a mother's activities, it never diminishes a mother's love for her children. The book is fun and yet realistic and will capture your child's heart.
ISBN
9781499094459
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR EF 850.5 MAL 2014
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How to live well with chronic pain and illness: A mindful guide

https://libraries.phsa.ca/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 BER 2015
Comfort, understanding, and advice for those who are suffering?and those who care for them. ; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges a…
Title
How to live well with chronic pain and illness: A mindful guide
Author
Bernhard, Toni
Place
Somerville, MA
Publisher
Wisdom Publications
Year Published
2015
Physical Description
337 pages
Topics
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 BER 2015
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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In sickness and in play: Children coping with chronic illness

https://libraries.phsa.ca/permalink/catalog109943
Clark, Cindy Dell. New Brunswick, NJ: Rutgers University Press , 2003. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CLA 2003
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes. ; Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews w…
Title
In sickness and in play: Children coping with chronic illness
Author
Clark, Cindy Dell
Place
New Brunswick, NJ
Publisher
Rutgers University Press
Year Published
2003
Physical Description
Paperback, 225 p. : ill.
Topics
Coping with Chronic Illness-Children
Asthma
Abstract
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes.
Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews with families create an opportunity to learn and cope with the issues.
Notes
Includes notes, bibliography and index
ISBN
0813532701
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CLA 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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WYNC Radio. New York, NY: Castle Works Inc. , 2003. In the Mix, the national PBS weekly series for teens by teens. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH EF 850.6 WYN 2003
This program addresses the most critical issues and problems concerning school, friends and family that challenge young people who are coping with serious and/or chronic conditions. Teens speak frankly from their experiences - sharing their concerns and advice with insight and humor. A boy describe…
Title
In the mix: Living with illness
Author
WYNC Radio
Edition
In the Mix, the national PBS weekly series for teens by teens
Place
New York, NY
Publisher
Castle Works Inc.
Year Published
2003
Physical Description
DVD: 30 min.
Topics
Coping with Chronic Illness ? Young Adult
Chronic Illness
Young Adults
Asthma
Abstract
This program addresses the most critical issues and problems concerning school, friends and family that challenge young people who are coping with serious and/or chronic conditions. Teens speak frankly from their experiences - sharing their concerns and advice with insight and humor. A boy describes his ways of dealing with Chrohn's; a girl copes with Juvenile Diabetes; and other teens that are in treatment for asthma, cancer and sickle cell anemia give facts, and dispel misconceptions. They all stress that they want to be treated as normal teenagers.
ISBN
1931843511
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH EF 850.6 WYN 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Kids with chronic illness: The parent's burden

https://libraries.phsa.ca/permalink/catalog110283
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 ACQ 2003
This DVD shows how various families cope with their children's chronic illness.
Title
Kids with chronic illness: The parent's burden
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness in the Family
Abstract
This DVD shows how various families cope with their children's chronic illness.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 ACQ 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://libraries.phsa.ca/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 CHA 2014 STACKS
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Title
Mon enfant a une maladie chronique : Stratégies, ressources, moyens
Author
Chartre, Marie-Eve
Gagne, Johanne
Place
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Year Published
2014
Physical Description
Paperback, 127 p.
Topics
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 CHA 2014 STACKS
Copy 1 BC Children's and Women's Family Support & Resource Centre STACKS Available
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Positive coping with health conditions: A self-care workbook

https://libraries.phsa.ca/permalink/catalog111156

http://www.comh.ca/publications/resources/pub_pchc/PCHC%20Workbook.pdf

Bilsker, Dan, Samra, Joti, Goldner, Elliot. Burnaby, BC: Consortium for Organizational Mental Healthcare, Simon Fraser University , 2009. (Book, Online)
Audience
Patient or Public
Agency
BC Children's and Women's
URL Notes
CLick on the link to view
This is a self-care manual authored by scientist-practitioners with expertise in issues relating to coping with health conditions. This manual is designed for individuals who deal with health conditions, including patients, physicians, psychologists, nurses, rehabilitation professionals and resear…
Title
Positive coping with health conditions: A self-care workbook
Author
Bilsker, Dan
Samra, Joti
Goldner, Elliot
Place
Burnaby, BC
Publisher
Consortium for Organizational Mental Healthcare, Simon Fraser University
Year Published
2009
Physical Description
112 page PDF File
Topics
Coping with Chronic Illness
Stress
Stress Reduction
Stress and Health Effects
Stress Reduction Techniques
Abstract
This is a self-care manual authored by scientist-practitioners with expertise in issues relating to coping with health conditions. This manual is designed for individuals who deal with health conditions, including patients, physicians, psychologists, nurses, rehabilitation professionals and researchers.
Material Type
Book
Online
Agency
BC Children's and Women's
URL
http://www.comh.ca/publications/resources/pub_pchc/PCHC%20Workbook.pdf
URL Notes
CLick on the link to view
Audience
Patient or Public

Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://libraries.phsa.ca/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CAR 2016
Title
Quand la vie se fragilise: Un guide pour vous et vos proches aidants
Author
Cardinal Remete, France
Place
Montreal, QC
Publisher
Multimondes Inc.
Year Published
2016
Physical Description
Paperback, 311 p.
Topics
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CAR 2016
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Teens with chronic illness: Through their eyes

https://libraries.phsa.ca/permalink/catalog110284
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 0 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH EF 850.6 AQU 2003
This DVD tells the story of teenagers living with chronic conditions such as sickle cell disease and spinal muscular atrophy.
Title
Teens with chronic illness: Through their eyes
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Topics
Coping with Chronic Illness Young Adult
Abstract
This DVD tells the story of teenagers living with chronic conditions such as sickle cell disease and spinal muscular atrophy.
Notes
*Audience: Health professionals working with teens.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH EF 850.6 AQU 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre On Loan, due January 12, 2017

La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://libraries.phsa.ca/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 HUM 2012 STACKS
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Title
La vie...avant, pendant et après: Les soins palliatifs pédiatriques
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place
Montreal, QC
Publisher
CHU Sainte-Justine
Year Published
2012
Physical Description
Paperback, 335 p.
Topics
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 HUM 2012 STACKS
copy 1 BC Children's and Women's Family Support & Resource Centre STACKS Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://libraries.phsa.ca/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014. (Book)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 CHR 2014
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Title
Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place
Denver, Colorado
Publisher
Outskirts Press, Inc.
Year Published
2014
Physical Description
Softcover ; [18 p.], illustrations
Topics
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
ISBN
9781478732969
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR EF 850.5 CHR 2014
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