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An Autumn called Evan: Life with an exceptional child

https://libraries.phsa.ca/permalink/catalog112865
Klane, Deborah. Rockland, ME: Seven Coin Press , 2003. (Book) — 1 copy, 1 available
Audience
Professional
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Call Number
REF EF 850.5 KLA 2003
Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthday—a miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of …
Title
An Autumn called Evan: Life with an exceptional child
Author
Klane, Deborah
Corporate Author
Klane, Deborah
Place
Rockland, ME
Publisher
Seven Coin Press
Year Published
2003
Physical Description
Paperback, 210 p.
Topics
Coping with Chronic Illness
Coping with Chronic Illness-Children
Physical Disability. Physically Challenged
Abstract
Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthday—a miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of Evan's birth. We learn what it is like to be the parent of an exceptional child, as much as we learn what life is like for the child. To help illustrate the life of this family, their experiences, and emotions, Klane has included poems and drawings she created over the years, which have been sprinkled throughout the book, as well as family photographs. All of these are a touching reminder that this family is real and that the issues they face every day are huge. Too, this is as much a how-to book as it is the story of one family. There are chapters included on being an effective team player, taking care of yourself as a parent, learning to trust your own instincts, and how to stand up for yourself and your child when you in disagreement with the professionals. A glossary is included, as well as a medical timeline, which is a bit of a capsulation of the events Evan experienced during each year of his life to date.
ISBN
097009745X
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Audience
Professional
Call Number
REF EF 850.5 KLA 2003
Copy 1 BC Children's and Women's Sunny Hill Education Resource Centre REF Available
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An Autumn called Evan: Life with an exceptional child

https://libraries.phsa.ca/permalink/catalog110406
Klane, Deborah. Rockland, ME: Seven Coin Press , 2003. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Call Number
EF 850.5 KLA 2003
Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthday—a miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of …
Title
An Autumn called Evan: Life with an exceptional child
Author
Klane, Deborah
Corporate Author
Klane, Deborah
Place
Rockland, ME
Publisher
Seven Coin Press
Year Published
2003
Physical Description
Paperback, 210 p.
Topics
Coping with Chronic Illness
Coping with Chronic Illness-Children
Physical Disability. Physically Challenged
Abstract
Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthday—a miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of Evan's birth. We learn what it is like to be the parent of an exceptional child, as much as we learn what life is like for the child. To help illustrate the life of this family, their experiences, and emotions, Klane has included poems and drawings she created over the years, which have been sprinkled throughout the book, as well as family photographs. All of these are a touching reminder that this family is real and that the issues they face every day are huge. Too, this is as much a how-to book as it is the story of one family. There are chapters included on being an effective team player, taking care of yourself as a parent, learning to trust your own instincts, and how to stand up for yourself and your child when you in disagreement with the professionals. A glossary is included, as well as a medical timeline, which is a bit of a capsulation of the events Evan experienced during each year of his life to date.
ISBN
097009745X
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Sunny Hill Education Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 KLA 2003
Copy 1 BC Children's and Women's Sunny Hill Education Resource Centre Available
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Caring for kids with life threatening illness

https://libraries.phsa.ca/permalink/catalog110287
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2003. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 AQU 2003
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Title
Caring for kids with life threatening illness
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2003
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Caregiving
Abstract
This DVD discusses palliative care, an approach that treats a sick child's whole family, with a range of services from social work to medical care to psychological support and guidance.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 AQU 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Digging deep: A journal for young people facing health challenges

https://libraries.phsa.ca/permalink/catalog113126
Offner, Rose, Brisson, Sheri. San Francisco, CA: Resonance House , 2013. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
Title
Digging deep: A journal for young people facing health challenges
Author
Offner, Rose
Brisson, Sheri
Place
San Francisco, CA
Publisher
Resonance House
Year Published
2013
Physical Description
Softcover: 137 p.
Topics
Coping with Chronic Illness-Children
Abstract
Look inside and learn what kids facing critical health issues wonder and worry about - they're probably things you think and feel, too. This interactive journal's colourful art and progression of targeted questions will inspire you to explore your deepest feelings, challenges, hopes and dreams.
ISBN
9780989103909
Language
English
Material Type
Book
Agency
BC Children's and Women's
Call Number
YOUTH EF 850.6 OFF 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Lost
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Good-bye, bumps! Talking to what's bugging you

https://libraries.phsa.ca/permalink/catalog119793
Dyer, Wayne W., Dyer, Saje, Heller Budnick, Stacy. India: Hay House Publishers India , 2014. (Book) — 1 copy, 1 available
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them,…
Title
Good-bye, bumps! Talking to what's bugging you
Author
Dyer, Wayne W.
Dyer, Saje
Heller Budnick, Stacy
Place
India
Publisher
Hay House Publishers India
Year Published
2014
Physical Description
Hardcover, ill., 29 p.
Topics
Coping with Chronic Illness-Children
Fiction
Abstract
In Good-bye, Bumps!, Dr. Wayne W. Dyer and his daughter Saje tell a remarkable story from her childhood in which she was able to overcome a physical condition in a very unique way. In the telling of this story Saje and Wayne teach children the important lesson that when something is bothering them, they can change their attitude toward it and not allow it to have power over them.
ISBN
9781401945855
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR EF 850.5 DYE 2013
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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In sickness and in play: Children coping with chronic illness

https://libraries.phsa.ca/permalink/catalog109943
Clark, Cindy Dell. New Brunswick, NJ: Rutgers University Press , 2003. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 CLA 2003
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes. ; Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews w…
Title
In sickness and in play: Children coping with chronic illness
Author
Clark, Cindy Dell
Place
New Brunswick, NJ
Publisher
Rutgers University Press
Year Published
2003
Physical Description
Paperback, 225 p. : ill.
Topics
Coping with Chronic Illness-Children
Asthma
Abstract
"In Sickness and in Play" looks at ways children and families can deal with the issues which face them when dealing with either asthma or diabetes.
Since chronically ill children are at greater risk of developing mental health and social adjustment problems than other children, these interviews with families create an opportunity to learn and cope with the issues.
Notes
Includes notes, bibliography and index
ISBN
0813532701
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 CLA 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://libraries.phsa.ca/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 CHA 2014
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Title
Mon enfant a une maladie chronique : Stratégies, ressources, moyens
Author
Chartre, Marie-Eve
Gagne, Johanne
Place
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Year Published
2014
Physical Description
Paperback, 127 p.
Topics
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 CHA 2014
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Through the eyes of a child: Living with diabetes, lupus and cystic fibrosis

https://libraries.phsa.ca/permalink/catalog110236
Sabreen, Rich (Producer). Sherborn, MA: Aquarius Health Care Media , 2007. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850 SAB 2007
This program is told through the eyes of five young people who are living with these serious chronic illnesses on a daily basis. It is shot primarily by the families themselves, and the stories unfold as we follow them through a day in each of their lives. Learn just a little more about the lives o…
Title
Through the eyes of a child: Living with diabetes, lupus and cystic fibrosis
Author
Sabreen, Rich (Producer)
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2007
Physical Description
1 DVD (27 min.)
Series
Keeping Kids Healthy
Topics
Coping with Chronic Illness-Children
Diabetes
Abstract
This program is told through the eyes of five young people who are living with these serious chronic illnesses on a daily basis. It is shot primarily by the families themselves, and the stories unfold as we follow them through a day in each of their lives. Learn just a little more about the lives of people around you who are showing tremendous strength in the face of life’s greatest challenges.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850 SAB 2007
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://libraries.phsa.ca/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
EF 850.5 HUM 2012
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Title
La vie...avant, pendant et après: Les soins palliatifs pédiatriques
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place
Montreal, QC
Publisher
CHU Sainte-Justine
Year Published
2012
Physical Description
Paperback, 335 p.
Topics
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
EF 850.5 HUM 2012
copy 1 BC Children's and Women's Family Support & Resource Centre Available
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9 records – page 1 of 1.