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http://www.cbc.ca/video/#/Shows/The_Passionate_Eye/1274903384/ID=1333883430

Lyall, Philip, Mukerji, Nimisha. Vancouver, BC: Force Four Entertainment , 2009. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FA 850 LYA 2009
URL Notes
Click on URL to watch streaming video online.
This personal and touching documentary takes an unflinching look into the lives of Eva Markvoort and her two online friends who are all battling Cystic Fibrosis (CF) - a fatal genetic disease affecting the lungs and digestive system. Premiered: November 16, 2009 on CBC TV.
Title
65_RedRoses
Author
Lyall, Philip
Mukerji, Nimisha
Place
Vancouver, BC
Publisher
Force Four Entertainment
Year Published
2009
Physical Description
1 DVD: 71 min.
Topics
Cystic Fibrosis
Lung-Transplantation
Respiratory Tract Diseases-Coping
Abstract
This personal and touching documentary takes an unflinching look into the lives of Eva Markvoort and her two online friends who are all battling Cystic Fibrosis (CF) - a fatal genetic disease affecting the lungs and digestive system. Premiered: November 16, 2009 on CBC TV.
Notes
65 Red Roses
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
http://www.cbc.ca/video/#/Shows/The_Passionate_Eye/1274903384/ID=1333883430
URL Notes
Click on URL to watch streaming video online.
Audience
Patient or Public
Call Number
FA 850 LYA 2009
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Deford, Frank. Nashville, Tennessee: Rutledge Hill Press , 1997. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FA 850 DEF 1997
A father recalls his daughter's courageous struggle with cystic fibrosis.
Title
Alex: The life of a child
Author
Deford, Frank
Place
Nashville, Tennessee
Publisher
Rutledge Hill Press
Year Published
1997
Physical Description
Softcover: 228 p.
Topics
Cystic Fibrosis
Abstract
A father recalls his daughter's courageous struggle with cystic fibrosis.
ISBN
9781558535527
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FA 850 DEF 1997
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Canadian Cystic Fibrosis Foundation

https://libraries.phsa.ca/permalink/catalog104242

http://www.cysticfibrosis.ca

Canadian Cystic Fibrosis Foundation. Toronto, ON: Canadian Cystic Fibrosis Foundation (Online)
Audience
Patient or Public
Agency
BC Children's and Women's
Provides links to their local chapters, publications, research; also provides a "listserv" (message board) for discussion with other people interested in cystic fibrosis.
Title
Canadian Cystic Fibrosis Foundation
Corporate Author
Canadian Cystic Fibrosis Foundation
Place
Toronto, ON
Publisher
Canadian Cystic Fibrosis Foundation
Topics
Cystic Fibrosis
Abstract
Provides links to their local chapters, publications, research; also provides a "listserv" (message board) for discussion with other people interested in cystic fibrosis.
Material Type
Online
Agency
BC Children's and Women's
URL
http://www.cysticfibrosis.ca
Audience
Patient or Public

Cystic fibrosis: A day in the life

https://libraries.phsa.ca/permalink/catalog110261
Montefiore Medical Centre, Thirtee/WNET, Rick Sabreen Enterprises. Sherborn, MA: Aquarius Health Care Media , 2004. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FA 850 AQU 2004
This DVD features young people with CF, and discusses lung transplants.
Title
Cystic fibrosis: A day in the life
Corporate Author
Montefiore Medical Centre
Thirtee/WNET
Rick Sabreen Enterprises
Place
Sherborn, MA
Publisher
Aquarius Health Care Media
Year Published
2004
Physical Description
1 DVD (26 min.)
Series
Keeping Kids Healthy
Topics
Cystic Fibrosis
Abstract
This DVD features young people with CF, and discusses lung transplants.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FA 850 AQU 2004
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Cystic fibrosis and physiotherapy

https://libraries.phsa.ca/permalink/catalog113116

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1681CysticFibrosisPhysiotherapy_2014.pdf

Physiotherapy Department. Vancouver, BC: BC Children's Hospital , 2014. (Pamphlet)
Agency
BC Children's and Women's
Call Number
BCCH1681
This booklet is designed to help assist parents who are giving physiotherapy to their children at home. It includes sections on:|- Physiotherapy: Modified Postural Drainage with Percussion and Vibration|- The Respiratory System: How is it Different in Cystic Fibrosis?|- The Respiratory System: What
Title
Cystic fibrosis and physiotherapy
Corporate Author
Physiotherapy Department
Place
Vancouver, BC
Publisher
BC Children's Hospital
Year Published
2014
Physical Description
PDF file: 9 p.
Topics
Cystic Fibrosis
Abstract
This booklet is designed to help assist parents who are giving physiotherapy to their children at home. It includes sections on:
- Physiotherapy: Modified Postural Drainage with Percussion and Vibration
- The Respiratory System: How is it Different in Cystic Fibrosis?
- The Respiratory System: What is it made up of?
- Making Physiotherapy Part of Your Child's Life
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1681CysticFibrosisPhysiotherapy_2014.pdf
Call Number
BCCH1681
Orenstein, David M., Rosenstein, Beryl J., Stern, Robert C. Philadelphia, PA: Lippincott Williams & Wilkins , c2000. (Book) — 2 copies, 2 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FA 850 ORE 2000
An easy-to-read book which provides critical information on cystic fibrosis at the molecular and cellular level. The authors are recognized experts in the field of cystic fibrosis and have developed this book to answer questions regarding diagnosis, treatment, and managing a person with cystic
Title
Cystic fibrosis: Medical care
Author
Orenstein, David M.
Rosenstein, Beryl J.
Stern, Robert C.
Place
Philadelphia, PA
Publisher
Lippincott Williams & Wilkins
Year Published
c2000
Physical Description
Paperback; 365 p.
Topics
Cystic Fibrosis
Abstract
An easy-to-read book which provides critical information on cystic fibrosis at the molecular and cellular level. The authors are recognized experts in the field of cystic fibrosis and have developed this book to answer questions regarding diagnosis, treatment, and managing a person with cystic fibrosis.
ISBN
0781717981
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FA 850 ORE 2000
Copy 2 BC Children's and Women's Family Support & Resource Centre Available
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Telgemeier, Raina. New York, NY: Graphix , 2016. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
YOUTH FA 850 TEL 2016
Catrina and her family are moving to the coast of Northern California because her little sister, Maya, is sick. Cat isn't happy about leaving her friends for Bahía de la Luna, but Maya has cystic fibrosis and will benefit from the cool, salty air that blows in from the sea. As the girls explore
Title
Ghosts
Author
Telgemeier, Raina
Place
New York, NY
Publisher
Graphix
Year Published
2016
Physical Description
Softcover; 240 p.
Topics
Cystic Fibrosis
Abstract
Catrina and her family are moving to the coast of Northern California because her little sister, Maya, is sick. Cat isn't happy about leaving her friends for Bahía de la Luna, but Maya has cystic fibrosis and will benefit from the cool, salty air that blows in from the sea. As the girls explore their new home, a neighbor lets them in on a secret: There are ghosts in Bahía de la Luna. Maya is determined to meet one, but Cat wants nothing to do with them. As the time of year when ghosts reunite with their loved ones approaches, Cat must figure out how to put aside her fears for her sister's sake -- and her own.
ISBN
9780545540629
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
YOUTH FA 850 TEL 2016
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
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Managing cystic fibrosis-related diabetes (CFRD): An instruction guide for patients and families

https://libraries.phsa.ca/permalink/catalog106974
Hardin, Dana S., Brunzell, Carol, Schissel, Kathleen, Schindler, Terri, Moran, Antoinette. Bethesda, MD: Cystic Fibrosis Foundation , 2002. 3rd ed. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FA 850 HAR 2002
A guide that explains that a person with cystic fibrosis and diabetes has a unique type of diabetes (CFRD) and that the diagnosis and treatment for this type is not the same as the treatment for other types of diabetes. It offers information on tests used to diagnose CFRD, nutrition, exercise and
Title
Managing cystic fibrosis-related diabetes (CFRD): An instruction guide for patients and families
Author
Hardin, Dana S.
Brunzell, Carol
Schissel, Kathleen
Schindler, Terri
Moran, Antoinette
Edition
3rd ed.
Place
Bethesda, MD
Publisher
Cystic Fibrosis Foundation
Year Published
2002
Physical Description
Paperback, 72 p.
Topics
Cystic Fibrosis
Diabetes Mellitus
Multisystem Diseases
Diabetes
Abstract
A guide that explains that a person with cystic fibrosis and diabetes has a unique type of diabetes (CFRD) and that the diagnosis and treatment for this type is not the same as the treatment for other types of diabetes. It offers information on tests used to diagnose CFRD, nutrition, exercise and role of caregivers in the mangement of CFRD.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
FA 850 HAR 2002
Copy 1 BC Children's and Women's Family Support & Resource Centre Available
Starbright Foundation. Los Angeles, CA: Starbright Foundation , 2001. (CD, Audio) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR AB 40 STA 2001
; ages 10 to 15; Fitting cystic fibrosis into your life every day; ages 10 to 15; Living with kidney disease; ages 10 to 15.
Title
Starbright explorer series
Corporate Author
Starbright Foundation
Place
Los Angeles, CA
Publisher
Starbright Foundation
Year Published
2001
Physical Description
1 computer optical disc : sd., col. ; 4 3/4 in.
Topics
Medical Software (includes games)
Cystic Fibrosis
Bone Marrow.Bone Marrow Diseases
Sickle-Cell Anemia
Kidney/Kidney Disease
Radiology
Abstract
Eight interactive programs in which children and families learn about medical conditions and procedures in a fun and engaging way. The programs are designed to empower children and teens with knowledge and stimulate dialogue between children, families and health care professionals. Includes graphics, animation and audio.
Contains: Spotlight on IVs; ages 6 to 10; Sickle cell Slime-O-Rama game; ages 6 to 14; Discovering the secrets of spinal fluid; ages 10 to 15; Bone marrow aspiration and biopsy; ages 10 to 15; Welcome to the radiology center; ages 6 to 10; Exploring our incredible blood; ages 10 to 15; Fitting cystic fibrosis into your life every day; ages 10 to 15; Living with kidney disease; ages 10 to 15.
Notes
System requirements: Macintosh: Power PC; 32 MB RAM; 16-bit color display at 800x600 resolution; System 7.1 or higher; 4X CD-ROM drive.; System requirements: Windows: 200 MHz or faster processor; 32 MB RAM; 16-bit color display at 800x600 resolution; Windows 95/98; 4X CD-ROM drive.; Power PC; System 7.1; PC; Windows 95/98
Language
English
Material Type
CD
Audio
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR AB 40 STA 2001
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Starbright fitting CF into your life everyday

https://libraries.phsa.ca/permalink/catalog106513
Starbright Foundation. Los Angeles, CA: Starbright Foundation , 2001. (CD, Audio) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR FA 850 STA 2001
Developed for teens and pre-teens, ages 10 to 15, with cystic fibrosis as they begin to take on more responsibility for managing their disease. The program was designed to help teens better understand core CF management principles, and features animated depictions of the lungs and digestive system
Title
Starbright fitting CF into your life everyday
Corporate Author
Starbright Foundation
Place
Los Angeles, CA
Publisher
Starbright Foundation
Year Published
2001
Physical Description
1 computer optical disc : sd., col. ; 4 3/4 in.
Topics
Cystic Fibrosis
Multisystem Diseases
Medical Software (includes games)
Abstract
Developed for teens and pre-teens, ages 10 to 15, with cystic fibrosis as they begin to take on more responsibility for managing their disease. The program was designed to help teens better understand core CF management principles, and features animated depictions of the lungs and digestive system in order to drive home key messages about adhering to lung clearance techniques, medications, enzymes and diet regimen. Also offers an interactive question and answer section, where young adolescents can find advice and tips from older teens with CF about challenges they may face. The CD-ROM also includes programs about IVs, Blood Tests, X-Rays, CT Scans and MRIs and is provided free of charge to children and teens with CF, their families and health care professionals.
Notes
System Requirements:
Windows: 200mhz or faster processor; 32MB RAM 16-bit color display at 800x600 resolution; Windows 95/98; 4x CD-ROM drive.
Macintosh: PowerPC; 32MB RAM; 16-bit color display at 800x600 resolution; OS 7.5.5 or higher; 4x CD-ROM drive
Language
English
Material Type
CD
Audio
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR FA 850 STA 2001
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Understanding cystic fibrosis: Written by doctors for kids

https://libraries.phsa.ca/permalink/catalog121419
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018. (Booklet)
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR FA 850 REN 2018
Join Ella as she learns how cystic fibrosis affects the lungs and pancreas, how CF is treated, and what it means to have a genetic disorder.
Title
Understanding cystic fibrosis: Written by doctors for kids
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place
New York, NY
Publisher
Jumo
Year Published
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Topics
Cystic Fibrosis
Abstract
Join Ella as she learns how cystic fibrosis affects the lungs and pancreas, how CF is treated, and what it means to have a genetic disorder.
Language
English
Material Type
Booklet
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR FA 850 REN 2018

Understanding nutrition in cystic fibrosis: Written by doctors for kids

https://libraries.phsa.ca/permalink/catalog121230
Hogg, James. New York, NY: Jumo , 2018. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR FA 850 HOG 2018
Comic book featuring Medikidz, superhero experts on health and illness. Children with cystic fibrosis can use enzyme replacements, vitamin supplements and extra calories to get enough nutrition.
Title
Understanding nutrition in cystic fibrosis: Written by doctors for kids
Author
Hogg, James
Editor
Medikidz USA Inc.
Place
New York, NY
Publisher
Jumo
Year Published
2018
Physical Description
Softcover; 32 p.
Topics
Cystic Fibrosis
Nutrition
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Children with cystic fibrosis can use enzyme replacements, vitamin supplements and extra calories to get enough nutrition.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR FA 850 HOG 2018
copy 1 BC Children's and Women's Family Support & Resource Centre Available

Understanding pancreatic enzymes: Written by doctors for kids

https://libraries.phsa.ca/permalink/catalog121389
Quigley, Columba, deLoache, Shawn. New York, NY: Medikidz USA, Inc. , 2018. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
JUNIOR FA 850 QUI 2018
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Beth understand her body and how illness and replacement enzymes affects it.
Title
Understanding pancreatic enzymes: Written by doctors for kids
Author
Quigley, Columba
deLoache, Shawn
Editor
Quigley, Columba
Place
New York, NY
Publisher
Medikidz USA, Inc.
Year Published
2018
Physical Description
Softcover; 16 p.
Topics
Cystic Fibrosis
Abstract
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Beth understand her body and how illness and replacement enzymes affects it.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Audience
Patient or Public
Call Number
JUNIOR FA 850 QUI 2018
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Who and when to call for help for your baby with Cystic Fibrosis (CF)

https://libraries.phsa.ca/permalink/catalog112392

http://www.cw.bc.ca/library/PDF/pamphlets/BCCH1642_HelpCysticFibrosis_2013.pdf

Newborn Screening Team for Cystic Fibrosis. Vancouver, BC: BC Children's Hospital , 2013. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
BCCH1642
URL Notes
Click on the link above to view/print.
This pamphlet is for parents with babies who have Cystic Fibrosis. It details signs to look for when deciding whether to go to Emergency, and when and who to call to make an appointment.
Title
Who and when to call for help for your baby with Cystic Fibrosis (CF)
Corporate Author
Newborn Screening Team for Cystic Fibrosis
Place
Vancouver, BC
Publisher
BC Children's Hospital
Year Published
2013
Physical Description
PDF file: 1 p.
Topics
Cystic Fibrosis
Infants
Abstract
This pamphlet is for parents with babies who have Cystic Fibrosis. It details signs to look for when deciding whether to go to Emergency, and when and who to call to make an appointment.
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/PDF/pamphlets/BCCH1642_HelpCysticFibrosis_2013.pdf
URL Notes
Click on the link above to view/print.
Audience
Patient or Public
Call Number
BCCH1642

14 records – page 1 of 1.