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http://www.cw.bc.ca/library/pdf/pamphlets/BCCH388deflazacort.pdf

Neuromuscular Clinic with assistance from the Department of Learning & Development. Vancouver, BC: BC Children's Hospital and Health Centre , 2005. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
PE 388
URL Notes
click on the link above to view.
Explains what Deflazacort is, what it does and its side effects.
Title
Deflazacort information sheet
Corporate Author
Neuromuscular Clinic with assistance from the Department of Learning & Development
Place
Vancouver, BC
Publisher
BC Children's Hospital and Health Centre
Year Published
2005
Physical Description
1 PDF
Topics
Muscular Dystrophy
Drug Therapy . Pharmacology
Drug Side Effects
Abstract
Explains what Deflazacort is, what it does and its side effects.
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH388deflazacort.pdf
URL Notes
click on the link above to view.
Audience
Patient or Public
Call Number
PE 388

Education matters: A teacher's guide to Duchenne muscular dystrophy

https://libraries.phsa.ca/permalink/catalog110514

http://www.parentprojectmd.org

Parent Project Muscular Dystrophy. Middletown, OH: Parent Project Muscular Dystrophy , 2006. (Book) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FB 615 PAR 2006
Education Matters is a guide for parents and teachers specifically about educational and other classroom-related issues for young men with Duchenne muscular dystrophy (DMD). Written by Parent Project Muscular Dystrophy (PPMD), it offers practical information on DMD as it relates to a young man’s
Title
Education matters: A teacher's guide to Duchenne muscular dystrophy
Corporate Author
Parent Project Muscular Dystrophy
Place
Middletown, OH
Publisher
Parent Project Muscular Dystrophy
Year Published
2006
Physical Description
1 3-ring binder (3 booklets)
Topics
Duchenne Muscular Dystrophy
Abstract
Education Matters is a guide for parents and teachers specifically about educational and other classroom-related issues for young men with Duchenne muscular dystrophy (DMD). Written by Parent Project Muscular Dystrophy (PPMD), it offers practical information on DMD as it relates to a young man’s educational experience and specific advice on helping him succeed in the classroom.
Language
English
Material Type
Book
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
http://www.parentprojectmd.org
Audience
Patient or Public
Call Number
FB 615 PAR 2006
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Essential points to remember if your child is going to take Deflazacort

https://libraries.phsa.ca/permalink/catalog110478

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH389deflazacort.pdf

Neuromuscular Clinic with assistance from the Department of Learning & Development. Vancouver, BC: BC Children's Hospital and Health Centre , 2005. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
PE 389
URL Notes
Click on the link above to view.
Includes a list of important points for parents about administering and managing Deflazacort.
Title
Essential points to remember if your child is going to take Deflazacort
Corporate Author
Neuromuscular Clinic with assistance from the Department of Learning & Development
Place
Vancouver, BC
Publisher
BC Children's Hospital and Health Centre
Year Published
2005
Physical Description
1 PDF
Topics
Muscular Dystrophy
Drug Side Effects
Drug Therapy-Children
Abstract
Includes a list of important points for parents about administering and managing Deflazacort.
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH389deflazacort.pdf
URL Notes
Click on the link above to view.
Audience
Patient or Public
Call Number
PE 389

Giving face to Duchenne: Understanding the disease, guidelines for care and management

https://libraries.phsa.ca/permalink/catalog110517

http://www.parentprojectmd.org

Parent Project Muscular Dystrophy. Middletown, OH: Parent Project Muscular Dystrophy , 2003. (Kit) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FB 615 PAR 2003
This two-DVD set brings together available information about Duchenne muscular dystrophy. Disc one offers an overview of the disease; Disc two covers specific issues surrounding care and management. A companion booklet provides information for newly diagnosed individuals.
Title
Giving face to Duchenne: Understanding the disease, guidelines for care and management
Corporate Author
Parent Project Muscular Dystrophy
Place
Middletown, OH
Publisher
Parent Project Muscular Dystrophy
Year Published
2003
Physical Description
2 DVD + 1 booklet
Topics
Duchenne Muscular Dystrophy
Abstract
This two-DVD set brings together available information about Duchenne muscular dystrophy. Disc one offers an overview of the disease; Disc two covers specific issues surrounding care and management. A companion booklet provides information for newly diagnosed individuals.
Language
English
Material Type
Kit
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
http://www.parentprojectmd.org
Audience
Patient or Public
Call Number
FB 615 PAR 2003
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Healthy Bones: Information for caregivers of children with neuromotor disability

https://libraries.phsa.ca/permalink/catalog109465

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1632_HealthyBones_2012.pdf

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1632_HealthyBonesRead_2012.pdf

Vancouver, BC: Sunny Hill Health Centre for Children , 2012. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
BCCH1632
URL Notes
Click on the link to view/print. The second link is a "read-only" version.
For caregivers of children with neuromotor disability (such as cerebral palsy, spinal cord injury, myelomeningocele, brain injury, muscular dystrophy...) who may have some problems with their bone health.
Title
Healthy Bones: Information for caregivers of children with neuromotor disability
Place
Vancouver, BC
Publisher
Sunny Hill Health Centre for Children
Year Published
2012
Physical Description
PDF file: 4 p.
Topics
Bones. Bone Diseases
Bones/Joints/Muscles. Bones/Joints/Muscles Diseases. Orthopedics
Muscles. Muscle Diseases
Neuromuscular Disorders
Muscular Dystrophy
Spinal Cord Injuries
Cerebral Palsy
Physical Disability. Physically Challenged
Parenting Children with Disabilities
Abstract
For caregivers of children with neuromotor disability (such as cerebral palsy, spinal cord injury, myelomeningocele, brain injury, muscular dystrophy...) who may have some problems with their bone health.
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1632_HealthyBones_2012.pdf
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1632_HealthyBonesRead_2012.pdf
URL Notes
Click on the link to view/print. The second link is a "read-only" version.
Audience
Patient or Public
Call Number
BCCH1632

How to access Deflazacort in British Columbia

https://libraries.phsa.ca/permalink/catalog110477

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH387deflazacort.pdf

Neuromuscular Clinic with assistance from the Department of Learning & Development. Vancouver, BC: BC Children's Hospital and Health Centre , 2005. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
PE 387
URL Notes
Click on the link above to view.
Deflazacort™ is not approved for general use in Canada. It is not available at your local pharmacy. However, if you and your child’s Neurologist decide that Deflazacort™ could be helpful for your child with DMD, it can be made available on compassionate grounds. This pamphlet explains the process o…
Title
How to access Deflazacort in British Columbia
Corporate Author
Neuromuscular Clinic with assistance from the Department of Learning & Development
Place
Vancouver, BC
Publisher
BC Children's Hospital and Health Centre
Year Published
2005
Physical Description
1 PDF
Topics
Drug Therapy-Children
Muscular Dystrophy
Muscles. Muscle Diseases
Abstract
Deflazacort™ is not approved for general use in Canada. It is not available at your local pharmacy. However, if you and your child’s Neurologist decide that Deflazacort™ could be helpful for your child with DMD, it can be made available on compassionate grounds. This pamphlet explains the process of obtaining access to this medication.
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH387deflazacort.pdf
URL Notes
Click on the link above to view.
Audience
Patient or Public
Call Number
PE 387

Laura's choice: Reproductive options for carriers of Duchenne muscular dystrophy

https://libraries.phsa.ca/permalink/catalog110515

http://www.parentprojectmd.org

Parent Project Muscular Dystrophy. Middletown, OH: Parent Project Muscular Dystrophy , 2006. (Video) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FB 615 PAR 2006b
Follows the journey of a fictional young woman whose brother has Duchenne Muscular Dystrophy (DMD). Laura learns she is a carrier and in preparation for a serious relationship and motherhood, Laura visits geneticists and counsellors to learn about the options and choices open to her, including: CVS
Title
Laura's choice: Reproductive options for carriers of Duchenne muscular dystrophy
Corporate Author
Parent Project Muscular Dystrophy
Place
Middletown, OH
Publisher
Parent Project Muscular Dystrophy
Year Published
2006
Physical Description
1 DVD
Topics
Duchenne Muscular Dystrophy
Abstract
Follows the journey of a fictional young woman whose brother has Duchenne Muscular Dystrophy (DMD). Laura learns she is a carrier and in preparation for a serious relationship and motherhood, Laura visits geneticists and counsellors to learn about the options and choices open to her, including: CVS, amniocentesis and IVF.
Language
English
Material Type
Video
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
http://www.parentprojectmd.org
Audience
Patient or Public
Call Number
FB 615 PAR 2006b
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Stretches for Duchenne muscular dystrophy

https://libraries.phsa.ca/permalink/catalog110516

http://www.parentprojectmd.org

Parent Project Muscular Dystrophy. Middletown, OH: Parent Project Muscular Dystrophy , 2007. (CD, Audio) — 1 copy, 1 available
Audience
Patient or Public
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
Call Number
FB 615 PAR 2007
This CD demonstrates a variety of stretching exercises.
Title
Stretches for Duchenne muscular dystrophy
Corporate Author
Parent Project Muscular Dystrophy
Place
Middletown, OH
Publisher
Parent Project Muscular Dystrophy
Year Published
2007
Physical Description
1 CD-ROM
Topics
Duchenne Muscular Dystrophy
Abstract
This CD demonstrates a variety of stretching exercises.
Notes
Requires Windows Media Player
Language
English
Material Type
CD
Audio
Agency
BC Children's and Women's
Location
Family Support & Resource Centre
URL
http://www.parentprojectmd.org
Audience
Patient or Public
Call Number
FB 615 PAR 2007
Copy 1 BC Children's and Women's Family Support & Resource Centre Available

Understanding Duchenne: About Duchenne

https://libraries.phsa.ca/permalink/catalog110601

http://www.parentprojectmd.org/site/PageServer?pagename=Understand_about

Parent Project Muscular Distrophy. Fort Lee, NJ: Parent Project Muscular Distrophy , 2008. (Online)
Audience
Patient or Public
Agency
BC Children's and Women's
This website gives information about Duchenne Muscular Dystrophy. A section with information for family members can be found in the menu at the left-hand side of the page.
Title
Understanding Duchenne: About Duchenne
Corporate Author
Parent Project Muscular Distrophy
Place
Fort Lee, NJ
Publisher
Parent Project Muscular Distrophy
Year Published
2008
Topics
Duchenne Muscular Dystrophy
Abstract
This website gives information about Duchenne Muscular Dystrophy. A section with information for family members can be found in the menu at the left-hand side of the page.
Material Type
Online
Agency
BC Children's and Women's
URL
http://www.parentprojectmd.org/site/PageServer?pagename=Understand_about
Audience
Patient or Public

What you should know about your child's skin health: A healthy skin guide for caregivers of children with a neuromotor disability

https://libraries.phsa.ca/permalink/catalog109464

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1633_SkinHealth_2012.pdf

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1633_SkinHealthRead_2012.pdf

Vancouver, BC: Sunny Hill Health Centre for Children , 2012. (Pamphlet)
Audience
Patient or Public
Agency
BC Children's and Women's
Call Number
BCCH1633
URL Notes
Click on the link above to view/print. The second link is a "read-only" version.
For caregivers of children with a neuromotor disability such as cerebral palsy, spinal cord injury, myelomeningocele, brain injury, muscular dystrophy or any other disability that prevents or limits their ability to control their muscles and feel sensations. Information on how to help your child's
Title
What you should know about your child's skin health: A healthy skin guide for caregivers of children with a neuromotor disability
Place
Vancouver, BC
Publisher
Sunny Hill Health Centre for Children
Year Published
2012
Physical Description
PDF file: 6 p.
Topics
Skin. Skin Diseases
Skin Infections
Muscles. Muscle Diseases
Neuromuscular Disorders
Muscular Dystrophy
Spinal Cord Injuries
Cerebral Palsy
Physical Disability. Physically Challenged
Parenting Children with Disabilities
Abstract
For caregivers of children with a neuromotor disability such as cerebral palsy, spinal cord injury, myelomeningocele, brain injury, muscular dystrophy or any other disability that prevents or limits their ability to control their muscles and feel sensations. Information on how to help your child's skin stay healthy.
Language
English
Material Type
Pamphlet
Agency
BC Children's and Women's
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1633_SkinHealth_2012.pdf
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1633_SkinHealthRead_2012.pdf
URL Notes
Click on the link above to view/print. The second link is a "read-only" version.
Audience
Patient or Public
Call Number
BCCH1633

10 records – page 1 of 1.